Empowerment

ECCO EFCCA Patient Guidelines

In December 2014 the European Crohn’s and Colitis Organisation (ECCO) organised a meeting with IBD Patient Association Representatives and ECCO National Representatives (both nurses and physicians) with the aim to improve patient care and the quality of life for patients with inflammatory bowel disease (IBD). Patients, physicians and nurses were assembled in focus groups and reviewed topics which are of high relevance to patients. The overall outcome of this meeting was that there was an imminent need for patient guidelines.

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IMPACT

The IMPACT survey was a joint project of EFCCA and its national member associations. It was launched in November 2010 and closed in August 2011.

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The Impact of Perianal Fistulae on a Crohn’s Disease Patient’s Quality of Life

Final Results available!

 

We are excited to share our findings of the survey “The impact of perianal fistula in Crohn’s disease on quality of life” which is being presented virtually at the 16th ECCO Congress (2nd – 3rd and 8th – 10th July, 2021.)  Check out the e-poster with the full results! 

Go to Patient_Survey Poster_ECCO2020_0.pdf

Go to poster presentation ECCO 2021

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EFCCA Patient Talks

The global impact of COVID-19 has been overwhelming and without pause, accelerating at lightning speed, changing our lives and our way of seeing the world. In recent months, unfortunately, the philosophy of our organization, which is to create spaces for meeting, for dialogue between the various associations and all the interlocutors. has also had to change.

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HCP Training on Biosimilars

EFCCA has been collaborating with Medscape on a training session about  biosimilars and the patients' perspective which is addressed to Healthcare providers. The training session includes a video simulation and a leaflet addressed to patients and to be distributed by physicians during their medical examination. 

For more information about this project please contact the EFCCA office.

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EFCCA Academy

One of our flagship activities in terms of patient empowerment is the EFCCA Academy. The Academy was launched in 2018 to provide specialized training for people with IBD enabling them to raise awareness on specific topics and to become advocates for their IBD patient community. Academy qualified patients will become trainers of trainers within their own local community. Training usually takes place online as well as during face to face workshops. 

Below you will find more information on the archived and current training courses available: 

 

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Living with IBD video animation series

EFCCA has developed a series of animation videos that aim to equip people with practical advice and relevant information in order to bring about positive changes to the way they cope with their disease. The content of the videos reflect the views and perspectives of real people with IBD in real life scenarios. We are now working on the creation of two more animations, one that would look at IBD and maternity and the second animation about IBD and fatigue.
 
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