Education Forum on biologics

The educational forum on biologics took place on 2 December 2021 from 17 to 19h Central European Time.
This forum on key topics related to biologic medicines as well as on challenges of ensuring optimal disease management for patients amid the COVID-19 pandemic has been organised by the pharmaceutical company CELLTRION. EFCCA participated in several sessions in order to provide the patient perspective.
Read time: 1 min

Symposium on Patient Safety

On 30 May 2015 EFCCA organized the Symposium on Patient Safety, which took place in Brussels and gathered for the first time representatives from the medical and patient community

as well as representatives from the pharmaceutical industries and other stakeholders in order to discuss the issue of biological medicines and biosimilars.

Read time: 2 mins

ECCO-EFCCA Patient Guidelines

The highly anticipated translations of the ECCO-EFCCA Patient Guidelines have been completed and will be officially  launched in February 2017 at the 12th Congress of ECCO in Barcelona. The ECCO Guidelines on UC and CD are considered the reference for practice by a majority of the specialist IBD units in Europe. The translations of these guidelines from medical to lay language offers patients and physicians a common background of knowledge that may facilitate dialogue, understanding and common involvement in decision making.

Read time: 1 min

Exploring South America

The cold, long winter months often make us dream about escaping to some warmer destination. Here we would like to share a story as posted on the website of our colleagues from Crohn´s and Colitis Australia asking volunteers to share their experiences about travelling with IBD. Please note that this information is not intended to be used as medical advice and you should speak to your health care provider before planning a trip.

Exploring South America

Where did you go?

South America (Brazil, Argentina, Bolivia, Peru, Chile).

Read time: 3 mins

Life after IBD diagnosis

For many people, diagnosis with inflammatory bowel disease (IBD) can be an overwhelming and confusing time. Not just for the person with the condition, but also for those who are close to them.

Being able to move forward following a diagnosis is important. People need to have the confidence to know that they can live well with their condition. “My IBD Journey: life after IBD diagnosis” is based on the real-life experiences of people with IBD and provides advice and suggested positive steps people can take as they look to the future.

Read time: 1 min

Trek to Mount Everest Base Camp

IBD-trek to Mt. Everest Base Camp

For many years I’ve been thinking about doing a trek in the Himalayas, especially the trek to Mt. Everest Base Camp. The year of 2014 should be the year to do it! But I’d never been in Asia before so I had to take my precautions, since we’ve all heard stories about people getting sick because of the food there. I took the following three precautions before leaving Denmark:

1.     Making sure I didn’t have a flare up before I left the country by taking some blood

Read time: 7 mins