The highly anticipated ECCO-EFCCA Patient Guidelines have been presented at a Press conference on March 16, 2016 at the RAI Amsterdam Congress Center, preceeding the 11th ECCO Congress.
Watch an INTERVIEW (click here) with one of the Chair of the Patient Working Group, Martin Kojinkov, EFCCA chairperson.
International conference on Patient Safety, European Parliament, Brussels
No decision about us without us!
Patient representatives participate in open debate on patient safety issues and right to information at the European Parliament
On 30 May 2015 EFCCA organized the Symposium on Patient Safety, which took place in Brussels and gathered for the first time representatives from the medical and patient community
as well as representatives from the pharmaceutical industries and other stakeholders in order to discuss the issue of biological medicines and biosimilars.
The highly anticipated translations of the ECCO-EFCCA Patient Guidelines have been completed and will be officially launched in February 2017 at the 12th Congress of ECCO in Barcelona. The ECCO Guidelines on UC and CD are considered the reference for practice by a majority of the specialist IBD units in Europe. The translations of these guidelines from medical to lay language offers patients and physicians a common background of knowledge that may facilitate dialogue, understanding and common involvement in decision making.
The cold, long winter months often make us dream about escaping to some warmer destination. Here we would like to share a story as posted on the website of our colleagues from Crohn´s and Colitis Australia asking volunteers to share their experiences about travelling with IBD. Please note that this information is not intended to be used as medical advice and you should speak to your health care provider before planning a trip.
Exploring South America
Where did you go?
South America (Brazil, Argentina, Bolivia, Peru, Chile).
Factsheet on IBD
For many people, diagnosis with inflammatory bowel disease (IBD) can be an overwhelming and confusing time. Not just for the person with the condition, but also for those who are close to them.
Being able to move forward following a diagnosis is important. People need to have the confidence to know that they can live well with their condition. “My IBD Journey: life after IBD diagnosis” is based on the real-life experiences of people with IBD and provides advice and suggested positive steps people can take as they look to the future.
IBD-trek to Mt. Everest Base Camp
For many years I’ve been thinking about doing a trek in the Himalayas, especially the trek to Mt. Everest Base Camp. The year of 2014 should be the year to do it! But I’d never been in Asia before so I had to take my precautions, since we’ve all heard stories about people getting sick because of the food there. I took the following three precautions before leaving Denmark:
1. Making sure I didn’t have a flare up before I left the country by taking some blood
Patient representatives participate in open debate on patient safety issues and right to information at the European Parliament