Empowerment

Horizon Europe

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The Impact of Crohn’s Perianal Fistula on Quality of Life: Results of an International Patient Survey

The Impact of Crohn’s Perianal Fistula on Quality of Life: Results of an International Patient Survey

August 2023

An international patient survey examined the impact of Crohn’s perianal fistula on patients' quality of life. Patients with both Crohn’s disease and perianal fistulae reported significantly greater negative effects on overall quality of life, well-being, relationships, social life, and work life compared to those with only Crohn’s disease. The study highlights the need for targeted therapeutic strategies to address these burdens.

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DIVA - Data Insights for added therapeutic VAlue

EFCCA´s new working methodology aims to identify and address the real needs of patients with Crohn’s disease and Ulcerative Colitis, also collectively known as Inflammatory Bowel Disease (IBD). 

The working methodology is based on the concept of analysing and interpreting scientific  data in order to improve therapeutic outcomes. EFCCA’s approach is called DIVA  (Data Insights for Added therapeutic VAlue) which will make use of publicly available data as well as internal EFCCA data to analyse and interpret the IBD patient communities’ unmet needs. 

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Horizon Europe - FIBROTARGET

EFCCA is involved in an exciting new Horizon Europe project called FIBROTARGET. This project aims to validate novel immunotherapeutic targets against fibrosis in inflammatory bowel disease in order to obtain patients and regulatory approval for implementation of these novel noninvasive imaging modalities as diagnostic and prognostic tools for fibrotic IBD.

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A Narrative Systematic Review and Categorisation of Outcomes in Inflammatory Bowel Disease to Inform a Core Outcome Set for Real-world Evidence

A Narrative Systematic Review and Categorisation of Outcomes in Inflammatory Bowel Disease to Inform a Core Outcome Set for Real-world Evidence

November, 2022

The study developed a core outcome set for real-world studies in adult patients with inflammatory bowel disease (IBD). Other indicators include, for example, clinical, endoscopic, and biomarker remission, fatigue, and urgency to go to the toilet. 

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