The Impact of Perianal Fistulae on a Crohn’s Disease Patient’s Quality of Life

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Final Results available!


We are excited to share our findings of the survey “The impact of perianal fistula in Crohn’s disease on quality of life” which is being presented virtually at the 16th ECCO Congress (2nd – 3rd and 8th – 10th July, 2021.)  Check out the e-poster with the full results! 

Go to Patient_Survey Poster_ECCO2020_0.pdf

Go to poster presentation ECCO 2021


Watch video presentation

Download our infograph: fistula_infograph.pdf

About the Survey

EFCCA  has embarked on exciting  research with Takeda to find out the impact of complex perianal fistulae on quality of life from Crohn’s disease patients’ perspective. Crohn’s disease patients both with and without perianal fistulae are invited to participate.

The questionnaire has been developed in cooperation with both experts and patient representatives.  It includes questions about diagnosis, symptoms experienced, and the impact of the condition on quality of life in different areas – personal relationships (spouse, family and friends), work, and social life.

Why this survey? 

The aim is to provide valuable insights into the life of a patient with perianal fistulae.  Complex perianal fistulas have a significant impact on the quality of life in Crohn’s disease At the closing of the survey (31 December 2019) over 800 respondents with Crohn’s disease had completed the questionnaire. More than half of the respondents had perianal fistulas. 


A poster introducing the concept of the survey was presented at the ECCO Congress in Vienna on February 14, 2020. During the summer of 2020, the EFCCA team has been working on analyzing the data in preparation for publishing the full results. However, as several medical congresses and meetings have been rescheduled due to the COVID-19 pandemic, the communication plan for the full results of the survey will also need to be rescheduled accordingly.

See Patient_Survey Poster_ECCO2020.pdf


Patient_Survey Poster_ECCO2020.pdf

Project date: 
March, 2020