EFCCA organised a symposium on “Digital Health and Data: IBD patients´ view and perspectives” which took place during the ECCO Congress on 14 February 2020 from 14-15h in Vienna, Austria.
This was an unique event bringing together IBD patients, healthcare providers and other stakeholder in order to start discussions on how digital health and big data can contribute in delivering more personalised care and offering a higher quality of life of patients with IBD.
New survey on the indirect costs of IBD. The aim of the study is to assess the influence of IBD on the patients productivity at work and relevant costs for society. www.ibdcosts.eu Within the framework of World IBD Day 2019 the European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA) is supporting a new study which aims to assess the indirect or invisible costs of Crohn’s disease and ulcerative colitis, collectively known as Inflammatory Bowel Disease (IBD).
The pharmaceutical company, Pfizer, has launched a call for proposal within the framework of the "Independent Grants for Learning & Change".
The call is for proposals on "Appropriate Immunisations in Adult Patients with Immune-Mediated Inflammatory Conditions".
Follow the link for more informatio: https://www.pfizer.com/sites/default/files/rfp_files/IGLC_RFP_2018RA2_Im...
December, 2021
December, 2021
After publication of the LUCID study, the authors reported that the author name “Avedano” was incorrectly written as “Avendano”.
The original article has been updated.
May, 2021
Perianal fistulas (PAF) in Crohn’s disease (CD) may impair social performance, sexual function, life activities and overall patients’ quality of life (QoL). Patient experience is important in the treatment decision making and in providing adequate support. Despite the clinical relevance, few studies have addressed the patient perspective on the impact of PAF and complex PAF (CPAF) in CD on QoL.
February, 2021
The frequency of inflammatory bowel disease (IBD) is increased after marriage to an individual with the disease. Importantly, the offspring of these couples have a significant risk for developing the disease. Herein, the study aimed to better characterise conjugal IBD.
There is very little scientific evidence on patient preference targeted at the IBD patient community.
August, 2020
Surgery is indicated in selected patients with inflammatory bowel disease (IBD). However, due to a negative perception, surgery may be delayed, leading to possible unfavourable outcomes. The aim of this work was to investigate patients’ perceptions of surgery and the impact on reported outcomes.
August, 2020