Empowerment

EFCCA CEO,  Luisa Avedano, participated at the press conference on Paediatric Digestive Health during the UEG Week in Vienna on 17 October 2016. She presented the Transition to Adult Care project that was being implemented by the EFCCA Youth Group and which aimed to better understand the needs of young people with IBD as concerns transitory care.

The press conference was organised following the publication of the UEG´s report on Paediatric Digestive Health Across Europe.

For more information please contact our offices.

EFCCA Academy 2020 - Training Certified Patient Experts

We are pleased to announce that our new edition of the EFCCA Academy offering specialized training for IBD patients  started on  November 18^th 2020 via the EFCCA online learning platform. This training  will focus on Clinical Trials and is composed of 3 modules:

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Questionnaire BAB German language
 

Questionnaire BAB Spanish language
 

Questionnaire BAB Portoguese language
 

Questionnaire BAB Italian language
 

IBD in the workplace

In line with EFCCA´s priority theme for 2020 on Work and IBD  this video animation in the series of "My IBD journey" looks at the issue of IBD in the workplace. It provides support and advice about looking for a new job, how best to talk about your condition with your colleagues, and practical advice about managing IBD at work.

New publication!
 

We are excited to share our findings of the survey “The impact of perianal fistula in Crohn’s disease on quality of life” which is being presented virtually at the 16^th ECCO Congress (2nd – 3rd and 8th – 10th July, 2021.)  Check out the e-poster with the full results! #ECCOcongress #ECCO2021 #perianalfistula #Crohn #survey

Go to poster presentation

We are pleased to announce that four of our My IBD journey video series are now also available in Russian, the fifth video translation will be released for next World IBD Day.

 For many people, diagnosis with inflammatory bowel disease (IBD) can be an overwhelming and confusing time. Therefore the content of the videos reflect the views and perspectives of people with IBD in real life scenarios and the stories are positive and upbeat aimed at giving people confidence that they can live well with IBD.

The report from the ¨Optimal nutritional care for all¨conference is now available for download. The conference was organised by the European Nutrition for Health Alliance’s (ENHA) Optimal nutritional care for all (ONCA) campaign, the Patients Network for Medical Research and Health (EGAN) together with the European Patients Forum (EPF) and the Platform Patients and Food Netherlands , organized a conference for EU patients’ groups to discuss the topic of nutrition. 

"Considering whether to have ileal pouch surgery" is the title of a booklet for ulcerative colitis patients that was recently made in a joint effort between Andrew MacCombie from Crohn´s and Colitis New Zealand (and patient with an ileal pouch), Associate Professor Tim Eglinton (Colorectal Surgeon), and Professor Richard Gearry (Gastroenterologist). It is designed to help ulcerative colitis patients better understand and answer questions concerning surgically removing their colon (called a “colectomy”).

"Considering whether to have ileal pouch surgery" is a booklet for ulcerative colitis patients which was recently made in a joint effort between Dr Andrew McCombie, Crohn ́s and Colitis New Zealand (patient with an ileal pouch), Associate Professor Tim Eglinton (Colorectal Surgeon), and Professor Richard Gearry (Gastroenterologist). It is designed to help ulcerative colitis patients better understand and answer these questions on surgically removing their colon (called a “colectomy”).