The IBD Journey
The video ¨The IBD Journey¨ highlights the need for multi-disciplinary care in treating IBD, from a range of healthcare providers and carers, including doctors, nurses, psychologists and nutritionists.
Empowerment
EFCCA YOUTH Academy
We launched our Youth Academy addressed to young IBD patients (aged between 18 and 30) with the aim to increase the representativeness of the youth group, create a cohesive group of leaders of tomorrow and to empower young representatives.
The training programme was launched in November 2021 via the EFCCA's online learning platform and was attended by 14 students.
The Lucid Study
The LUCID study: living with ulcerative colitis; identifying the socioeconomic burden in Europe
December, 2021
Correction to: The LUCID study
Correction to: The LUCID study: living with ulcerative colitis; identifying the socioeconomic burden in Europe
December, 2021
After publication of the LUCID study, the authors reported that the author name “Avedano” was incorrectly written as “Avendano”.
The original article has been updated.
The impact of perianal fistula in Crohn’s disease on quality of life
The impact of perianal fistula in Crohn’s disease on quality of life: results of a patient survey conducted in Europe
May, 2021
Perianal fistulas (PAF) in Crohn’s disease (CD) may impair social performance, sexual function, life activities and overall patients’ quality of life (QoL). Patient experience is important in the treatment decision making and in providing adequate support. Despite the clinical relevance, few studies have addressed the patient perspective on the impact of PAF and complex PAF (CPAF) in CD on QoL.
Conjugal inflammatory bowel disease
Conjugal inflammatory bowel disease: a systematic review and European survey
February, 2021
The frequency of inflammatory bowel disease (IBD) is increased after marriage to an individual with the disease. Importantly, the offspring of these couples have a significant risk for developing the disease. Herein, the study aimed to better characterise conjugal IBD.
Patients’ perceptions of surgery for IBD
Patients’ perceptions of surgery for inflammatory bowel disease
August, 2020
Surgery is indicated in selected patients with inflammatory bowel disease (IBD). However, due to a negative perception, surgery may be delayed, leading to possible unfavourable outcomes. The aim of this work was to investigate patients’ perceptions of surgery and the impact on reported outcomes.
Patients' perspectives on smoking and inflammatory bowel disease
Patients' perspectives on smoking and inflammatory bowel disease: An online survey in collaboration with European Federation of Crohn's and Ulcerative Colitis Associations
August, 2020
Biosimilar knowledge and viewpoints among Brazilian inflammatory bowel disease patients
Biosimilar knowledge and viewpoints among Brazilian inflammatory bowel disease patients
August, 2020
In this analysis we aimed to describe Brazilian inflammatory bowel disease (IBD) patients’ knowledge and perceptions regarding biosimilars and compare with viewpoints from non-Brazilian patients.