EFCCA Magazine 2/2023
Our latest issue of the EFCCA magazine is out!!!
You will find updates on our activities, news from our members and partners, experiences of living with IBD and ongoing medical research.
Happy reading!
News
EFCCA Magazine 2/2023
EFCCA Magazine 1/2023
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EFCCA is hiring!
We are opening a position for Project Officer of Horizon Europe projects
The chosen candidate will be responsible for the overall administration and management support of H2020/ HE projects and will also actively contribute to the preparation of other project proposals.
Main activities and responsibilities
Paediatric inflammatory bowel disease
Paediatric inflammatory bowel disease: a multi-stakeholder perspective to improve development of drugs for children and adolescents
September, 2022
The study aims to find potential advanced treatment options for children with inflammatory bowel disease. A 2-day virtual meeting was held on April 14–15, 2021, for multi-stakeholders (clinical academics, patient community, pharmaceutical companies, and regulators) to discuss their perspectives on paediatric drug development for inflammatory bowel disease.
EFCCA Magazine 3/2022
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Factors associated with medical and psycosocioeconomic changes in IBD during the COVID-19 pandemic and post-pandemic period
Factors associated with medical and psycosocioeconomic changes in IBD during the COVID-19 pandemic and post-pandemic period
May, 2021
The pandemic of COVID-19 had posed challenges in every aspect of the people’s life. COVID-19 had affected all age groups in both previously healthy individuals and those with chronic disease including IBD. This study aimed to investigate the occurrence and factors associated with psychosocioeconomical and medical changes in patients with IBD during the COVID-19 pandemic and post-pandemicperiod in China.
IBD patients in Ukraine
Our colleagues from the Ukrainian IBD patient association ¨Fulfilling Life" have prepared this important survey on the current situation of IBD patients affected by the war in Ukraine.
White Book on IBD Research funded or promoted by IBD patient associations
This White Book on IBD Research funded or promoted by IBD patient associations was presented at the World Symposium – 18 October 2012, Brussels . The White Book aims to become a handbook and reference that IBD patient associations can use for getting new ideas in developing research-support strategies.
Date of issue: 2012-10-18
Patient Advocacy and Safety Conference
On 15th November 2016, more than 70 patient advocates and physicians from across the European Union attended the Patient Advocacy and Safety conference at the European Parliament in Brussels, Belgium.
The aim of the conference was to explore the topic of biologics and biosimilars and how different policies and practices across Europe impact on patients. Patient advocates raised concerns around non-medical switching, tracking and traceability, and informed patient consent.
Click on the attached file to download the final report.