News

Commissioner Borgh addressing EFCCA General Assembly

Commissioner Borgh from the European Commission´s Directorate for Health and Consumers welcomed delegates to the  24 General Assembly of EFCCA which took place in Graz (Austria) from 3-6 April 2014.

In his pre-recorded speech Commissioner Borgh acknowledged and applauded the work of EFCCA and showed his support to the efforts that the national associations and EFCCA were undertaking to improve the lives of people with IBD.

The 26^th Annual General Meeting of EFCCA took place in Brussels from 27-28 May 2016. It gathered over 40 delegates for one and a half days of busy work and exchange of information. In addition to the dealing with the institutional work and activities, delegates of the GA also listened to a presentation made by Marek Lichota from Apetitie for Life about artificial nutrition, a subject of particular interest for people with IBD.  The presentation was followed by a lively debate and exchange of ideas.

Date of issue: 2016-05-10

Videoclip from our World IBD Day event at the European Parliament (16 May 2013)

Date of issue: 2013-05-16

EFCCA is embarking on exciting new research with Takeda to find out the impact of complex perianal fistulae on quality of life from Crohn’s disease patients’ perspective. Crohn’s disease patients both with and without perianal fistulae are invited to participate.

MyUC.eu

After the initial testing phase, this new tool to support patients with Ulcerative Colitis in keeping track of daily changes and improvements with the disease is finally available. If you would like to use the tool, register on the homepage and let us know your impressions.

Please check out the tool at:

http://myuc.eu/

Any feedback please send  to Isabella Haaf: bella.haaf@efcca.org

There is little patient-centered research aimed at assessing patients' perceived impact of smoking or nicotine use on their Inflammatory Bowel Disease (IBD). Therefore, EFCCA is supporting a survey on the perceived effect of smoking/nicotine use on the symptoms and progression of Crohn's disease and Ulcerative Colitis in patients who are current adult smokers and/or nicotine-containing product users. 

World Symposium on IBD Research funded by IBD patients associations

Global alliance against IBD

On 18 October 2012,  the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) met  in Brussels with worldwide patient associations for the first ever World Symposium on IBD research funded or promoted by IBD patients' associations.

Thanks to all those who participated in the Anaemia survey. We will be back soon with its results

Date of issue: 2012-10-10

The European Commission DG for Internal Market, Industry, Entrepreneurship and SMEs, have published  6 new language versions of the patient information document "What you need to know about biosimilar medicines", so that patients now have access to unbiased and reliable information in English, French, German, Italian, Polish, Portuguese and Spanish.

EFCCA General Assembly 14-17 March 2013 Slovenia

Next years General Assembly will take place on 14-17 March 2013 and will be hosted by our Slovenian colleagues from the KVCB. More information will be made available in our "members" area of the website.

Date of issue: 2013-03-10