by Sanna Lönnfors, EFCCA Research and Project Coordinator
I recently participated in an online focus group on the topic of Work and IBD, the theme of this year’s World IBD Day. With seven fellow IBD patients, we thought of our job hunts and careers, how IBD has or has not affected our working lives, and what advice we could give to others who have IBD.
DRAFT..work in progress.....Patients from around Europe are telling us their stories on how IBD has affected their professional life.
We are pleased to publish the report of our Symposium on Digital Health and Data Collection which took place on 14 February 2020 during the ECCO Congress in Vienna, Austria.
Download Report.pdf
EFCCA is collaborating with the European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN) by promoting the study " The Indirect Costs of IBD" to raise awareness for World IBD 2019! Watch the video to see the hidden costs of IBD on our society in particular on children.
December, 2021
After publication of the LUCID study, the authors reported that the author name “Avedano” was incorrectly written as “Avendano”.
The original article has been updated.
May, 2021
Perianal fistulas (PAF) in Crohn’s disease (CD) may impair social performance, sexual function, life activities and overall patients’ quality of life (QoL). Patient experience is important in the treatment decision making and in providing adequate support. Despite the clinical relevance, few studies have addressed the patient perspective on the impact of PAF and complex PAF (CPAF) in CD on QoL.
EFCCA has been involved in an exciting project aimed at helping people to ‘live well’ with IBD. We have developed a series of animation videos that will equip people with practical advice and relevant information and hopefully will bring about positive changes to the way they cope with their disease. The topics are as follows: