World IBD Day 2022 - Purple Talk - IBD has no age
On the occasion of World IBD Day, on 19 May 2022 we organised a Purple Talk on “IBD has no age”. It was an excellent opportunity to raise awareness around the issue of IBD in the elderly.
Awareness Raising
Open Your Mind
Open Your Mind! ...is the name of a game developed by our colleagues from Crohn & Colitis NL to talk with your family, friends, doctors, colleagues etc in an innovative way about IBD.
IBD patients in Ukraine
Our colleagues from the Ukrainian IBD patient association ¨Fulfilling Life" have prepared this important survey on the current situation of IBD patients affected by the war in Ukraine.
World IBD Day 2022 - Purple Talk - IBD has no age
On the occasion of World IBD Day, on 19 May 2022 we organised a Purple Talk on “IBD has no age”. It was an excellent opportunity to raise awareness around the issue of IBD in the elderly.
A narrative systematic review and categorisation of outcomes in Inflammatory Bowel Disease to inform a Core Outcome Set for real-world evidence
A narrative systematic review and categorisation of outcomes in Inflammatory Bowel Disease to inform a Core Outcome Set for real-world evidence
May, 2021
Heterogeneity exists in reported outcomes and outcome measurement instruments (OMI) from observational studies. A core outcome set (COS) for observational and real-world evidence (RWE) in inflammatory bowel disease (IBD) will facilitate pooling large datasets. This systematic review, describes and classifies clinical and patient-reported outcomes, for COS development.
Anti-SARS-CoV-2 vaccines in IBD
Implementation and short-term adverse events of anti-SARS-CoV-2 vaccines in Inflammatory Bowel Disease patients: an international web-based survey
May, 2022
Anti-SARS-CoV-2 vaccines clinical trials did not include patients with immune-mediated conditions such as inflammatory bowel disease (IBD). The study aimed to describe the implementation of anti-SARS-CoV-2 vaccination among IBD patients, patients' concerns and side-effect profile of the anti-SARS-CoV-2 vaccines using real-world data.
Indirect costs of IBD
Survey on the indirect costs of IBD
The aim of the study was to assess the influence of IBD on the patients productivity at work and relevant costs for society.
Break the Silence! World IBD Day 2021
This year, for World IBD Day, EFCCA would like to promote the discussion on IBD and wellbeing.
EFCCA Patient Talks
The global impact of COVID-19 has been overwhelming and without pause, accelerating at lightning speed, changing our lives and our way of seeing the world. In recent months, unfortunately, the philosophy of our organization, which is to create spaces for meeting, for dialogue between the various associations and all the interlocutors. has also had to change.
World IBD Day
World IBD Day takes place on 19 May each year and unites people worldwide in their fight against Crohn's disease and ulcerative colitis, known as inflammatory bowel diseases (IBD).
This year our theme for World IBD Day is IBD HAS NO BORDERS : World IBD Day 2024