COVID-19 psycho-social impact of lockdown in patients with IBD
“How did the IBD patient community cope with the lockdown?”, “Which is the real meaning of isolation for a person living with IBD?”, “What is really back to normal meaning? “Which role did the patient associations play in the lockdown”?
EFCCA Patient Talk: Seasonal vaccines and IBD
Watch the event on Youtube: https://www.youtube.com/watch?v=0bE5C3mvmQY
Friday 27 November 2020, 3-4 pm
Friday 5 February 2021, 4:30 PM – 5:30 PM CET
As part of the EFCCA Patient Talks series, we organised our latest EFCCA Patient Talk which took place on Friday 5 February 2021 from 4.30 to 5.30 pm (CET) at our EFCCA Facebook
Live event. https://fb.me/e/3ztVNJwUG
Our latest EFCCA Patient Talk "(IBD) Families First" took place on 30 June 2021 from 5 - 6 PM.
NEW: Link to register to the focus group of this project: https://redcap.link/IBD_families
Families First is a global survey aimed at 1st degree relatives of IBD patients on preferences and fears for prediction & prevention interventions.
The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) and the European Crohn’s and Colitis Organisation (ECCO) have initiated the public awareness campaign “Join the fight against IBD”. Its aim is to enhance the general understanding of the physical and socio-economic burdens of the disease and to accelerate the dissemination of new standards of care of inflammatory bowel diseases (IBD) among health institutions, healthcare providers.
On 28-29 November a group of people living with IBD and IBD healthcare specialists from 6 countries in the Middle East including Oman, Saudi Arabia, Dubai, Qatar and Kuwait met for the first time in Dubai to exchange ideas and experiences on how to improve the quality of life of people with IBD in the Middle East.
The EFCCA purple team joins 20 km Brussels race in order to raise awareness about Crohn´s disease and Ulcerative Colitis.
Over 120 landmarks worldwide joined our global World IBD Day on 19 May to raise awareness about Crohn´s disease and Ulcerative Colitis, collectively known as IBD.
Famous landmarks from 28 countries on 5 continents were lit in purple that evening to show their support for the over 5 million people who live with Crohn’s disease and ulcerative colitis.
The campaign was led by EFCCA together with its national IBD patient associations and many other IBD sister organisations and IBD activistis from around the world.
This year, for World IBD Day, EFCCA would like to promote the discussion on IBD and wellbeing.
With our awareness raising campaign we want to start a dialogue and discussions on the psychological impact of the disease. Through a social media awareness raising campaign leading up to 19 May we want to show the hidden facts about what it is like to live with IBD. Under the hashtag #breakthesilence we want to show the world how a person with IBD really feels.