The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) and the European Crohn’s and Colitis Organisation (ECCO) have initiated the public awareness campaign “Join the fight against IBD”. Its aim is to enhance the general understanding of the physical and socio-economic burdens of the disease and to accelerate the dissemination of new standards of care of inflammatory bowel diseases (IBD) among health institutions, healthcare providers.
As part of the World IBD Day celebrations EFCC organised participation at the Brussels 20 km marathon in order to raise awareness about Crohn´s Disease and Ulcerative Colitis, collectively known as inflammatory bowel disease (IBD), which affect over 3 million people in Europe.
The 20 km marathon took place on 31 May at 10 am in Brussels, Belgium. Starting point was at the Parc du Cinquantenaire.
World IBD Day takes place on 19 May each year and unites people worldwide in their fight against Crohn's disease and ulcerative colitis, known as inflammatory bowel diseases (IBD).
This year our theme for World IBD Day is IBD HAS NO BORDERS : World IBD Day 2024
Our latest EFCCA Patient Talk "(IBD) Families First" took place on 30 June 2021 from 5 - 6 PM.
NEW: Link to register to the focus group of this project: https://redcap.link/IBD_families
Families First is a global survey aimed at 1st degree relatives of IBD patients on preferences and fears for prediction & prevention interventions.
Friday 5 February 2021, 4:30 PM – 5:30 PM CET
As part of the EFCCA Patient Talks series, we organised our latest EFCCA Patient Talk which took place on Friday 5 February 2021 from 4.30 to 5.30 pm (CET) at our EFCCA Facebook
Live event. https://fb.me/e/3ztVNJwUG
EFCCA Patient Talk: Seasonal vaccines and IBD
Watch the event on Youtube: https://www.youtube.com/watch?v=0bE5C3mvmQY
Friday 27 November 2020, 3-4 pm
COVID-19 psycho-social impact of lockdown in patients with IBD
“How did the IBD patient community cope with the lockdown?”, “Which is the real meaning of isolation for a person living with IBD?”, “What is really back to normal meaning? “Which role did the patient associations play in the lockdown”?
COVID-19 and medicines supply: “Are we running out of medicines?”
“Will I be able to access my biologics/biosimilars treatment?”, “Will my other IBD medicines be affected by COVID-19?”, “Are costs of my medicines likely to rise?”