Advocacy

EFCCA Symposium

EFCCA organised a symposium on “Digital Health and Data: IBD patients´ view and perspectives”  which took place during the ECCO Congress on 14 February 2020 from 14-15h in Vienna, Austria.

This was an unique event bringing together IBD patients, healthcare providers and other stakeholder in order to start discussions on how digital health and big data can contribute in delivering more personalised care and offering a higher quality of life of patients with IBD.

Read time: 2 mins

EFCCA YOUTH Academy

We launched our Youth Academy addressed to young IBD patients (aged between 18 and 30) with the aim to increase the representativeness of the youth group, create a cohesive group of leaders of tomorrow and to empower young representatives.

The training programme was launched in November 2021 via the EFCCA's online learning platform and was attended by 14 students.

Read time: 3 mins

The impact of perianal fistula in Crohn’s disease on quality of life

The impact of perianal fistula in Crohn’s disease on quality of life: results of a patient survey conducted in Europe

May, 2021

Perianal fistulas (PAF) in Crohn’s disease (CD) may impair social performance, sexual function, life activities and overall patients’ quality of life (QoL). Patient experience is important in the treatment decision making and in providing adequate support. Despite the clinical relevance, few studies have addressed the patient perspective on the impact of PAF and complex PAF (CPAF) in CD on QoL. 

Read time: 1 min

Conjugal inflammatory bowel disease

Conjugal inflammatory bowel disease: a systematic review and European survey

February, 2021

The frequency of inflammatory bowel disease (IBD) is increased after marriage to an individual with the disease. Importantly, the offspring of these couples have a significant risk for developing the disease. Herein, the study  aimed to better characterise conjugal IBD.

Read Study 

Read time: 1 min