IMPACT
The IMPACT survey was a joint project of EFCCA and its national member associations. It was launched in November 2010 and closed in August 2011.
Advocacy
From EU citizenship to IBD-zenship 2013
Conference at the European Parliament, 17 October 2013
“Equal Rights for Citizens with IBD” was the main message emerging from the conference organized by EFCCA in cooperation with the European Crohn’s and Colitis Organisation (ECCO) and United European Gastroenterologists (UEG) which took place in the European Parliament on 17 October.
ECCO EFCCA Patient Guidelines
In December 2014 the European Crohn’s and Colitis Organisation (ECCO) organised a meeting with IBD Patient Association Representatives and ECCO National Representatives (both nurses and physicians) with the aim to improve patient care and the quality of life for patients with inflammatory bowel disease (IBD). Patients, physicians and nurses were assembled in focus groups and reviewed topics which are of high relevance to patients. The overall outcome of this meeting was that there was an imminent need for patient guidelines.
IMPACT survey
New IMPACT publication
On the occasion of World IBD Day, we are making available our latest publication of the IMPACT survey.
The survey was a joint project of EFCCA and its national member associations. It was launched in November 2010 and closed in August 2011. IMPACT II is now on-going in several other countries in and outside Europe.
Stream of the 17 October 2013 conference
Live Streaming Now
EFCCA Symposium: Digital Health and Data Collection
EFCCA organised a symposium on “Digital Health and Data: IBD patients´ view and perspectives” which took place during the ECCO Congress on 14 February 2020 from 14-15h in Vienna, Austria.
This was an unique event bringing together IBD patients, healthcare providers and other stakeholder in order to start discussions on how digital health and big data can contribute in delivering more personalised care and offering a higher quality of life of patients with IBD.
Advocacy workshop on patient safety
From 4-6 February 2016 EFCCA (the European Federation of Crohn´s and Ulcerative Colitis Associations) together with GAfPA (Global Alliance for Patient Access) organised an advocacy workshop on patient safety which took place in Barcelona and gathered over 60 patient representatives from a wide range of immune modulate disease groups.
Press conference ECCO EFCCA Patient Guidelines
The highly anticipated ECCO-EFCCA Patient Guidelines have been presented at a Press conference on March 16, 2016 at the RAI Amsterdam Congress Center, preceeding the 11th ECCO Congress.
Watch an INTERVIEW (click here) with one of the Chair of the Patient Working Group, Martin Kojinkov, EFCCA chairperson.
Patient Safety conference
International conference on Patient Safety, European Parliament, Brussels
No decision about us without us!
Patient representatives participate in open debate on patient safety issues and right to information at the European Parliament
Symposium on Patient Safety
On 30 May 2015 EFCCA organized the Symposium on Patient Safety, which took place in Brussels and gathered for the first time representatives from the medical and patient community
as well as representatives from the pharmaceutical industries and other stakeholders in order to discuss the issue of biological medicines and biosimilars.