News

World IBD Day 2013

This month on 19 May World IBD Day is marked in many countries worldwide.   Please check out the World IBD Day website to learn more about and support some of the activities that EFCCA and other other sister organisations from around the globe are organising to raise awareness and to highlight what it means to live with IBD.   World IBD Day website at www.worldibdday.org...

Executive Summary - Patient Advocacy Workshop

This is the Executive Summary of the Patient Advocacy Workshop on Patient Safety which took place in Barcelona from 4-6 February 2016 and gathered over 60 patient representatives from a wide range of immune modulate disease groups.A full report will be made available shortly. Date of issue: 2016-02-06  

IPODD ... EU research project on IBD

The EU project IPODD takes a pragmatic approach to IBDs by focusing on the final stages of gut damage. Sergio Pistoi, IPODD Public Information Officer* If criminals were behind inflammatory bowel diseases (IBDs), it would be a band of terrorists, not lonely felons. Dozens of predisposing genes, the immune system and maybe tens of other unknown factors conspire to determine IBDs. There is no...

Join the fight against IBD Presentation Video

Watch the Join the fight against IBD Presentation Video   Date of issue: 2012-03-02  

EFCCA 2013 GA - Save the date

EFCCA General Assembly 14-17 March 2013 Slovenia Next years General Assembly will take place on 14-17 March 2013 and will be hosted by our Slovenian colleagues from the KVCB. More information will be made available in our "members" area of the website. Date of issue: 2013-03-10  

White Book on IBD Research funded or promoted by IBD patient associations

This White Book on IBD Research funded or promoted by IBD patient associations was presented at the World Symposium – 18 October 2012, Brussels . The White Book aims to become a handbook and reference that IBD patient associations can use for getting new ideas in developing research-support strategies. Date of issue: 2012-10-18  

Inflammatory Bowel Disease and the Effects of Tobacco/Nicotine Use

There is little patient-centered research aimed at assessing patients' perceived impact of smoking or nicotine use on their Inflammatory Bowel Disease (IBD). Therefore, EFCCA is supporting a survey on the perceived effect of smoking/nicotine use on the symptoms and progression of Crohn's disease and Ulcerative Colitis in patients who are current adult smokers ...

Short summary of the Join the Fight Press conference

Watch the video   Date of issue: 2013-03-11  

Thank you! Anaemia Survey

Thanks to all those who participated in the Anaemia survey. We will be back soon with its results   Date of issue: 2012-10-10  

World Symposium – 18 October 2012, Brussels

World Symposium on IBD Research funded by IBD patients associations Global alliance against IBD   On 18 October 2012,  the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) met  in Brussels with worldwide patient associations for the first ever World Symposium on IBD research funded or promoted by IBD patients' associations.   The...