News
COVID-19
https://www.dccv.de/betroffene-angehoerige/leben-mit-einer-ced/infektion... people especially those with chronic diseases such as IBD and/or who are taking immunosuppressant medications migth be concerned about the novel Coronavirus 2019 (COVID-19).
Below we have compiled information and guidance for this new virus from ECCO, EMA, IBD sister organisations available in...
EFCCA Symposium
EFCCA organised a symposium on “Digital Health and Data: IBD patients´ view and perspectives” which took place during the ECCO Congress on 14 February 2020 from 14-15h in Vienna, Austria.
This was an unique event bringing together IBD patients, healthcare providers and other stakeholder in order to start discussions on how digital health and big data can contribute in delivering more...
Manual for Teachers
We would like to share a useful publication prepared by Fundeccu Argentina. This guidebook is aimed at teachers to be better informed and prepared about students with chronic conditions such as #Crohn´s disease or #UlcerativeColitis. This booklet has been made with the contribution of doctors, children and adolescents with IBD, their mothers and teachers with relatives affected by this...
EFCCA Strategy Plan 2019-2022
The EFCCA Strategy Plan for the period of 2019-2022 provides direction to our member associations and informs stakeholders of EFCCA’s Vision, Mission, Values and the Priority areas EFCCA intends to focus on in the coming four years and how it plans to implement them.
EFCCA strategy-plan-2019-2022 (3).pdf
New EFCCA Executive Board
The EFCCA Executive Board as elected during our GA 2019 on 25 May 2019 in Prague.
From left to right:
Martin Mastrotto (on behalf of the EFCCA Youth Group during this GA), Natasa Theodosiou, Ciara Drohan (EFCCA Vice President and Honorary Secretary), Salvo Leone (EFCCA chairman), Magda Sajak, Marko Perovic (EFCCA Treasurer).
Nutrition and Chronic Digestive Diseases: An Action Plan for Europe
The United European Gastroenterology has launched a report on "Nutrition and Chronic Digestive Diseases: An Action Plan for Europe" to which EFCCA amongst other organisations has contributed. Follow this link to access the report: Read Report
The Indirect Costs of IBD
New survey on the indirect costs of IBD. The aim of the study is to assess the influence of IBD on the patients productivity at work and relevant costs for society. www.ibdcosts.eu Within the framework of World IBD Day 2019 the European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA) is supporting a new study which aims to assess the indirect or invisible costs of Crohn’s...
Making the Invisible Visible
EFCCA is collaborating with the European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN) by promoting the study " The Indirect Costs of IBD" to raise awareness for World IBD 2019! Watch the video to see the hidden costs of IBD on our society in particular on children.
Surgery in IBD
There are some topics that are hard to discuss, for which people may not want to share their opinions. Surgery in people with Inflammatory Bowel Disease (IBD) is one of these neglected topics. It is, however, extremely relevant and important to collect information about the perception of surgery, the impact on the quality of life, and worries about it.
The results of this...
Open Call for Patient Input – Joint Assessment on a medicinal product for UC.
EUnetHTA deems patient involvement very important in the production of Joint Assessment reports. We recognise that patients and those who support them have unique knowledge about what it is like to live with a specific disease or medical condition. We believe patient groups can help us understand patients’ unique perspectives by collecting and presenting patients’ and carers/care-givers’ views...