News
EFCCA breaking news nr. 3/2011
EUROPEAN MEDICINE AGENCY NEW WEB SITE
Rod Mitchell, our former Chair, who is currently the IAPO alternate at the European Medicines Agency Patient & Consumer Working Party sent us this relevant news. Being EFCCA a IAPO member I am more than pleased to circulate it to you all.
Patient and associated organisations together with other interested parties may like to be reminded that the...
EFCCA breaking news nr. 4/2011
Adoption of the Code of Conduct removes the last barrier to the formal conclusion of the UNCRPD
The UN Convention on the Rights of Persons with Disabilities (UNCRPD), which entered into force on 3 May 2008, is the first human rights Convention signed by the EU. All EU Member States have signed the UNCRPD and a majority has signed its Optional Protocol too. The next step,...
EFCCA breaking news nr. 5/2011
DUBLIN - ECCO CONGRESS. EFCCA CONSOLIDATES COOPERATION WITH ECCO.
As every year EFCCA participated in the ECCO Congress held in Dublin from 24 to 26 February 2011. A boot and dissemination material were at disposal of the congress participants.
The ECCO Congress was attended by over 3000 delegates consisting mainly of doctors and other healthcare professionals and provided...
EFCCA breaking news nr. 6/2011
BACK FROM SWITZERLAND: SMCCV 25th ANNIVERSARY
Last weekend EFCCA, represented by its Chair Marco Greco and myself, had the great honour to be invited to the SMCCV General Assembly celebrating its 25th anniversary. In a sunny and warm Friburg a significant number of delegates attended the meeting chaired by Bruno Raffa. After the auspicious speeches of Marco Greco and Rudolf...
EFCCA breaking news nr. 7/2011
EFCCA IS GLAD TO ANNOUNCE THAT THE WORLD IBD DAY WILL BE CELEBRATED IN BRUSSELS ON THE 19TH OF MAY ! IT’’S THE FIRST TIME WE ALL HAVE THE CHANCE TO RAISE AWARENESS AND GIVE PEOPLE WITH IBD A LOUDER VOICE IN EUROPE!
A REPRESENTATIVE FROM EACH NATIONAL MEMBER IS KINDLY INVITED TO ATTEND AND HER/HIS PARTICIPATION WILL BE FULLY COVERED BY EFCCA.
A STREET...
EFCCA breaking news nr.8 /2011
FEEDBACK FROM THE WORLD IBD DAY
Brussels, 19 May 2011
The sky is cloudy but weather forecasts are not very bad… fingers crossed.
9.45 AM – Marco Greco, Isabella Haaf and myself enter the Berlaymont building a little bit excited.
At 10.00 AM - Mrs Darmanin the head of the Cabinet of the Commissioner on Health and Consumers’ protection, Mr Dalli, is waiting for us.
It is the first...
EFCCA breaking news nr. 2/2011
WORLD IBD DAY WORK IN PROGRESS
As anticipated in the previous issue of our breaking news, EFCCA is collecting information on practices and initiatives on the World IBD Day planned by Member Associations. I'm particularly pleased to present you the first set of information coming from Crohn's and Colitis UK the brand-new working name of the National Association for Colitis and Crohn's Disease (...
EFCCA Magazine 1/2017
The first issue of the EFCCA Magazine 2017 is now available online. Enjoy reading about our latest activities, news from our members and other interesting articles related to IBD. Many thanks to those who have contributed to it!!!!
efcca_magazine_1_2017WEB.pdf
ECCO-EFCCA Patient Guidelines
The highly anticipated translations of the ECCO-EFCCA Patient Guidelines have been completed and will be officially launched in February 2017 at the 12th Congress of ECCO in Barcelona. The ECCO Guidelines on UC and CD are considered the reference for practice by a majority of the specialist IBD units in Europe. The translations of these guidelines from medical to lay language offers...
Life after IBD diagnosis
For many people, diagnosis with inflammatory bowel disease (IBD) can be an overwhelming and confusing time. Not just for the person with the condition, but also for those who are close to them.
Being able to move forward following a diagnosis is important. People need to have the confidence to know that they can live well with their condition. “My IBD Journey: life after IBD diagnosis” is...