News

EFCCA breaking news nr. 3/2011

EUROPEAN MEDICINE AGENCY NEW WEB SITE Rod Mitchell, our former Chair, who is currently the IAPO alternate at the European Medicines Agency Patient & Consumer Working Party sent us this relevant news. Being EFCCA a IAPO member I am more than pleased to circulate it to you all. Patient and associated organisations together with other interested parties may like to be reminded that the...

EFCCA breaking news nr. 1/2011

WORLD IBD DAY 19 MAY 2011 Here we are again and happy 2011 to you all! A new year just started and EFCCA is pleased to inform you all that the date for the second World IBD DAY has been finally agreed. It will be again May the 19th all over the world with a new entry association being part of the worldwide platform: New Zealand! EFCCA is willing to collect all the ideas...

EFCCA Annual General Meeting 2014

Commissioner Borgh addressing EFCCA General Assembly Commissioner Borgh from the European Commission´s Directorate for Health and Consumers welcomed delegates to the  24 General Assembly of EFCCA which took place in Graz (Austria) from 3-6 April 2014.   In his pre-recorded speech Commissioner Borgh acknowledged and applauded the work of EFCCA and showed his support to the...

UEG Week Barcelona 2015

October 24-28, 2015, Barcelona, Spain UEG Week is the largest and most prestigious meeting of its kind in Europe, and many consider it to be the best digestive diseases meeting in the world. It has been running since 1992 and now attracts more than 14,000 people from across the world. It features the latest advances in clinical management, the best research in GI and liver...

Symptom Tracker

  YourUC.com This is a useful new tool - currently in test phase - to support patients with Ulcerative Colitis. If you would like to test the tool, you will need to introduce the following information:   username: guest@youruc.com password: guest   Please check out the tool at:   http://youruc.sytes.net/my-uc-log/   Any feedback please...

Symptom Tracker

MyUC.eu After the initial testing phase, this new tool to support patients with Ulcerative Colitis in keeping track of daily changes and improvements with the disease is finally available. If you would like to use the tool, register on the homepage and let us know your impressions. Please check out the tool at: http://myuc.eu/   Any feedback please send  to Isabella Haaf...

Survey on IBD patients' perception of Surgery

An international online survey promoted by the European Federation Of Crohn’s And Ulcerative Colitis Associations (EFCCA) with the Scientific Support of and international team of experts led by Professor Antonino Spinelli, M.D., Ph.D. and Professor Francesco Pagnini, Psy.D., Ph.D.   As many of you may remember, this important project was presented at the EFCCA General Assembly in 2013. The...

World IBD Day 2015

This year more than 40 countries across the globe  joined  together in a unified effort to raise awareness about Crohn’s disease and ulcerative colitis in honor of  World IBD Day, held every year on May 19. This year’s efforts centered around a global video campaign encouraging anyone impacted by IBD to share their story in a short video with the unifying theme of  “United We...

World IBD Day 2014

Running together to raise awareness on IBD On 18 May 2014 the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA)  will participate in the Brussels half marathon to raise awareness about Crohn´s Disease and ulcerative colitis, collectively known as inflammatory bowel disease (IBD). IBD are two serious, chronic digestive diseases which which affect over 3 million...

EFCCA article published in Journal of Crohn´s and Colitis

Results of the EFCCA led IMPACT survey have been published in the latest issue of the Journal Crohn´s and Colitis. In the article entitled "IBD and health-related quality of life- Discovering the true impact" some of the main findings from the IMPACT survey have been highlighted.  The results of this survey can be used in defining strategic priorities and planning projects and awareness...