News
White Book on IBD Research funded or promoted by IBD patient associations
This White Book on IBD Research funded or promoted by IBD patient associations was presented at the World Symposium – 18 October 2012, Brussels . The White Book aims to become a handbook and reference that IBD patient associations can use for getting new ideas in developing research-support strategies.
Date of issue: 2012-10-18
World Symposium – 18 October 2012, Brussels
World Symposium on IBD Research funded by IBD patients associations
Global alliance against IBD
On 18 October 2012, the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) met in Brussels with worldwide patient associations for the first ever World Symposium on IBD research funded or promoted by IBD patients' associations.
The...
Thank you! Anaemia Survey
Thanks to all those who participated in the Anaemia survey. We will be back soon with its results
Date of issue: 2012-10-10
EFCCA 2013 GA - Save the date
EFCCA General Assembly 14-17 March 2013 Slovenia
Next years General Assembly will take place on 14-17 March 2013 and will be hosted by our Slovenian colleagues from the KVCB. More information will be made available in our "members" area of the website.
Date of issue: 2013-03-10
Join the fight against IBD Presentation Video
Watch the Join the fight against IBD Presentation Video
Date of issue: 2012-03-02
Patient Advocacy and Safety Conference
On 15th November 2016, more than 70 patient advocates and physicians from across the European Union attended the Patient Advocacy and Safety conference at the European Parliament in Brussels, Belgium.
The aim of the conference was to explore the topic of biologics and biosimilars and how different policies and practices across Europe impact on patients. Patient advocates raised concerns...
Artificial Nutrition
PACIFHAN assists people travelling with Home Artificial Nutrition
“To travel is to live” Hans Christian Andersen
Imagine having a complex medical condition and treatment that enables you to live but, when it comes to travelling could pose problems if you find yourself in a medical situation unable to converse in the local language.
PACIFHAN is the International Alliance of Patient...
What you need to know about biosimilar medicines
The European Commission DG for Internal Market, Industry, Entrepreneurship and SMEs, have published 6 new language versions of the patient information document "What you need to know about biosimilar medicines", so that patients now have access to unbiased and reliable information in English, French, German, Italian, Polish, Portuguese and Spanish. The information...
Symposium on Innovations in Gastroenterology
We are pleased to announce a new initiative, "Innovations in Gastroenterology, 2017 Symposium” to be held in Tel Aviv, January 4-6, 2017.
This will be an exclusive event where gastroenterologists, researchers, and the pharmaceutical industry from all over the world can meet and learn about novel emerging technologies as well as practical gastroenterology and hepatology. We have mentioned this...
MEPs propose ways to make medicines more affordable
New medicine prices in the EU have risen over the past few decades, to the point of being unaffordable for many EU citizens and threatening the sustainability of national health care systems.
To strike a better balance between EU countries’ public health interests and those of the pharmaceutical industry, it calls for measures to improve the traceability of R&D costs, public funding...