Active Projects

EFCCA is embarking on exciting new research with Takeda to find out the impact of complex perianal fistulae on quality of life from Crohn’s disease patients’ perspective. Crohn’s disease patients both with and without perianal fistulae are invited to participate.

The questionnaire has...

Make IBD work! 

19 May World IBD Day – Awareness raising campaign

IBD and parenthood - Survey on couples with IBD and their offspring

Although the cause of Inflammatory Bowel Disease (IBD) remains unknown, it is well recognized that a positive family history of disease remains the strongest risk factor for developing IBD. EFCCA...

New survey on the indirect costs of IBD. The aim of the study is to assess the influence of IBD on the patients productivity at work and relevant costs for society.

www.ibdcosts.eu

Within the framework of ...

EFCCA Academy - Training Certified Patient Experts

EFCCA is embarking on an exciting new project under the title "EFCCA Academy- Training Certified Patient Experts". The pilot phase will be launched mid 2018.

The idea of this project came about...

EFCCA is involved in an exciting project aimed at helping people to ‘live well’ with IBD. We are developing a series of animation videos that will equip people with practical advice and relevant information and hopefully will bring about positive changes to the way they cope with their disease...

In December 2014 the European Crohn’s and Colitis Organisation (ECCO) organised a meeting with IBD Patient Association Representatives and ECCO National Representatives (both nurses and physicians) with the aim to improve patient care and the quality of life for patients with inflammatory bowel...

The European Summer Camp, or “ESC”, project ran in 2010 and 2011. Two international summer camps with the motto “Catch Your Dream” were organized by EFCCA and the EFCCA Youth Group in the Netherlands, and they gathered together dozens of young people with Inflammatory Bowel...