"Considering whether to have ileal pouch surgery" is the title of a booklet for ulcerative colitis patients that was recently made in a joint effort between Andrew MacCombie from Crohn´s and Colitis New Zealand (and patient with an ileal pouch), Associate Professor Tim Eglinton (Colorectal Surgeon), and Professor Richard Gearry (Gastroenterologist). It is designed to help ulcerative colitis patients better understand and answer questions concerning surgically removing their colon (called a “colectomy”).
The European Commission has published translations of comprehensive information for patients on biosimilar medicines. It contains questions and answers on biosimilar medicines and is now available in 23 languages, serving as a reliable source of information for patients. http://ec.europa.eu/docsroom/documents/26632
The report from the ¨Optimal nutritional care for all¨conference is now available for download. The conference was organised by the European Nutrition for Health Alliance’s (ENHA) Optimal nutritional care for all (ONCA) campaign, the Patients Network for Medical Research and Health (EGAN) together with the European Patients Forum (EPF) and the Platform Patients and Food Netherlands , organized a conference for EU patients’ groups to discuss the topic of nutrition.
The video ¨The IBD Journey¨ highlights the need for multi-disciplinary care in treating IBD, from a range of healthcare providers and carers, including doctors, nurses, psychologists and nutritionists.
We proudly present the second issue of the EFCCA Magazine 2017. In this edition you will find a wide range of information about World IBD Day, EFCCA activities, the EFCCA Youth Group, member news and other inspiring stories from partners and IBD activists.
The first issue of the EFCCA Magazine 2017 is now available online. Enjoy reading about our latest activities, news from our members and other interesting articles related to IBD. Many thanks to those who have contributed to it!!!!
For many people, diagnosis with inflammatory bowel disease (IBD) can be an overwhelming and confusing time. Not just for the person with the condition, but also for those who are close to them.
Being able to move forward following a diagnosis is important. People need to have the confidence to know that they can live well with their condition. “My IBD Journey: life after IBD diagnosis” is based on the real-life experiences of people with IBD and provides advice and suggested positive steps people can take as they look to the future.