EUnetHTA deems patient involvement very important in the production of Joint Assessment reports. We recognise that patients and those who support them have unique knowledge about what it is like to live with a specific disease or medical condition. We believe patient groups can help us understand patients’ unique perspectives by collecting and presenting patients’ and carers/care-givers’ views and experiences by engaging with a wide range of patients.
We are proud to announce that the third video animation of our My IBD Journey series is now available. The video entitled “Mission: Remission” explains the different types of remission and provides advice on how you can work towards achieving remission, and the importance of staying on track with your treatment.
The pharmaceutical company, Pfizer, has launched a call for proposal within the framework of the "Independent Grants for Learning & Change".
The call is for proposals on "Appropriate Immunisations in Adult Patients with Immune-Mediated Inflammatory Conditions".
Follow the link for more informatio: https://www.pfizer.com/sites/default/files/rfp_files/IGLC_RFP_2018RA2_Im...
The latest issue of the EFCCA Magazine is now available!!!
"Considering whether to have ileal pouch surgery" is a booklet for ulcerative colitis patients which was recently made in a joint effort between Dr Andrew McCombie, Crohn ́s and Colitis New Zealand (patient with an ileal pouch), Associate Professor Tim Eglinton (Colorectal Surgeon), and Professor Richard Gearry (Gastroenterologist). It is designed to help ulcerative colitis patients better understand and answer these questions on surgically removing their colon (called a “colectomy”).
"Considering whether to have ileal pouch surgery" is the title of a booklet for ulcerative colitis patients that was recently made in a joint effort between Andrew MacCombie from Crohn´s and Colitis New Zealand (and patient with an ileal pouch), Associate Professor Tim Eglinton (Colorectal Surgeon), and Professor Richard Gearry (Gastroenterologist). It is designed to help ulcerative colitis patients better understand and answer questions concerning surgically removing their colon (called a “colectomy”).
The European Commission has published translations of comprehensive information for patients on biosimilar medicines. It contains questions and answers on biosimilar medicines and is now available in 23 languages, serving as a reliable source of information for patients. http://ec.europa.eu/docsroom/documents/26632
The report from the ¨Optimal nutritional care for all¨conference is now available for download. The conference was organised by the European Nutrition for Health Alliance’s (ENHA) Optimal nutritional care for all (ONCA) campaign, the Patients Network for Medical Research and Health (EGAN) together with the European Patients Forum (EPF) and the Platform Patients and Food Netherlands , organized a conference for EU patients’ groups to discuss the topic of nutrition.