World IBD Day 2014
As part of the World IBD Day celebrations EFCCA organised participation at the Brussels 20 km marathon in order to raise awareness about Crohn´s Disease and Ulcerative Colitis, collectively known as inflammatory bowel disease (IBD), which affect over 3 million people in Europe.
The 20 km marathon took place on 31 May at 10 am in Brussels, Belgium. Starting point was at the Parc du Cinquantenaire.
We had over 40 runners registered from 13 European countries including a mix of professional and amateur runners made up by patients, doctors, friends and family members.
EFCCA also had an information booth at the starting point of the race. The booth was run by a team of volunteers and supporters wearing the purple t-shirts of the EFCCA team and colour of World IBD Day and distributed purple ribbons and materials to inform people about IBD and about EFCCA activities.
EFCCA would like to thank the 20Km Brussels marathon staff for their support and assistance.
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World IBD Day 2014
Running to raise awareness
On 18 May 2014 the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) will participate in the Brussels half marathon to raise awareness about Crohn´s Disease and ulcerative colitis, collectively known as inflammatory bowel disease (IBD). IBD are two serious, chronic digestive diseases which which affect over 3 million people in Europe. IBD can be kept under control with medication, but despite extensive research there is currently no known cause or cure for IBD.
A small committed team of 15 runners representing 11 IBD patient associations from Belgium, Bulgaria,Denmark, Finland, Germany, Ireland, Italy, Portugal, Romania, Slovenia and Spain will face the challenging run of 20 km through the city centre of Brussels which will start at 10 am on the 18 May. “We want to show the world that having a chronic disease does not mean you cannot participate in an active and fulfilling life “ says Martin Kojinkov, one of the EFCCA runners and member of the EFCCA Executive Board.
With this event EFCCA wants to highlight the impact IBD is having on the quality of life of many people in Europe and worldwide. A survey EFCCA conducted in 16 European countries, illustrates the daily difficulties that people with IBD are facing not only as far as concerns their health but also their social, intimate and economic situations. New results from the IMPACT study will be presented during World IBD Day and will be available on the EFCCA website.
The event in Brussels forms part of other worldwide activities that are being undertaken by IBD sister associations from four continents to mark World IBD Day (official date on 19 May).
World IBD Day 2013
On the occasion of World IBD Day 2013 (official date 19 May) the European Federation of Crohn's and Ulcerative Colitis Associations (EFCCA) organised a stakeholder round table discussion at the European Parliament as part of a wider awareness raising campaign within the EU institutions. Representatives from the medical community such as Prof. R Stockbrugger (United European Gastroenterologists) and Prof. M. Vecchi (San Donato Policlinico - Milano) debated along with Members of the European Parliament (MEP Cofferati, MEP Panayotova ) and EFCCA chairman, M Greco about concrete measures and actions that need to be out in place in order to ensure full citizenship of people with IBD.
The debate initiates a public consultation process to develop recommendations for more effective governance to ensure that social, economic and health aspects of people living with IBD are considered in all policies. A Wiki platform will enable stakeholders to feed into the consultation process and the results will be represented at the global awareness raising at a conference taking place in October this year.
For more general information on World IBD Day please visit the website: www.worldibdday.org
World IBD Day 2012
ince 2010 EFCCA has been an active supporter of World IBD Day and its main focus with regard to World IBD Day is to target policy makers of the European institutions such as the European Commission and the European Parliament in order to increase awareness about IBD and to improve life of the over 2.2 million people living with IBD in Europe.
This year EFCCA hosted an awareness raising event in the European Parliament supported by several Members of the European Parliament (MEPs) who will engage in an initiative to create more attention on the difficulties that IBD patients have to face and, in particular on the lack of harmonized recognition, across the 27 European Member States, of the rights and needs of people living with IBD.
Part of this initiative is the preparation and presentation of a Parliamentary Question concerning the rights of people living with IBD to the European Commission.
The support that EFCCA is receiving from the members of the European Parliament is not only a symbolic action but also a clear statement in favor of IBD people and patients in general and it might be the first step of a legislative process able to fill the lack of harmonization and to eradicate the discriminations on IBD in the territory of the European Union.