The Association of patients with Inflammatory Bowel Disease “Fulfilling Life”
was founded in 2018 by IBD patients.
The main goals of the Association are:
1. Тo achieve implementation of a state program for the treatment of patients with IBD;
2. Protecting the rights and legitimate interests of patients with IBD, оrganization of the patient advocacy process;
3. Information and psychological support for patients with IBD;
4. Assistance in adaptation and social rehabilitation;
We would like to share a useful publication prepared by...
EFCCA is embarking on exciting new research with Takeda to find out the impact of complex perianal fistulae on quality of life from Crohn’s disease patients’ perspective. Crohn’s disease patients both with and without perianal fistulae are invited to participate.
The questionnaire has...
The EFCCA Strategy Plan for the period of 2019-2022 provides direction to our member associations and informs stakeholders of EFCCA’s Vision, Mission, Values and the Priority areas EFCCA intends to focus on in the coming four years and how it plans to implement them.
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The EFCCA Executive Board as elected during our GA 2019 on 25 May 2019 in Prague.
From left to right:
Martin Mastrotto (...
The United European Gastroenterology has launched a report on "Nutrition and Chronic Digestive Diseases: An Action Plan for Europe" to which EFCCA amongst other organisations has contributed. Follow this link to access the report:...
New survey on the indirect costs of IBD. The aim of the study is to assess the influence of IBD on the patients productivity at work and relevant costs for society. www.ibdcosts.eu Within the framework of World IBD Day 2019 the European Federation of Crohn’s...
EFCCA is collaborating with the European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN) by promoting the study " The Indirect Costs of IBD"...
There are some topics that are hard to discuss, for which people may not want to share their opinions. Surgery in people with Inflammatory Bowel Disease (IBD) is one of these neglected topics. It is, however, extremely relevant and important to collect information about the perception of...
EUnetHTA deems patient involvement very important in the production of Joint Assessment reports. We recognise that patients and those who support them have unique knowledge about what it is like to live with a specific disease or medical condition. We believe patient groups can help us...
EFCCA´s second Symposium on IBD Research funded by patients brought together over 80 representatives from patients groups from 5 continents, gastroenterologists and other healthcare providers as well as relevant stakeholders in order to reinforce patients’ role and voice in research.
It...
We are pleased to share a video that our member in Serbia ...