The GENEGUT project will transform the treatment of ileal CD by developing a first-in-class oral RNA-based therapy, tackling inflammation locally in the intestinal tissue, while avoiding systemic side effects.
EFCCA is involved in this exciting project that will identify digital endpoints that provide reliable, objective and sensitive evaluation of activities of daily living and Health-related quality of life (HRQoL) in ImmuneMediated Inflammatory Diseases such as IBD as well as other such as Rheumatoid Arthritis and Lupus and which will ultimately have a positive impact on the quality of life of these patients.
Out‐of‐pocket expenses of patients with inflammatory bowel disease: a comparison of patient‐reported outcomes across 12 European countries
There is a high variability of out-of-packet patient costs of inflammatory bowel diseases (IBDs), but the issue is not widely recognised. Therefore, the study compared patient costs of IBDs between 12 European countries.
Transitioning through paediatric and into adult care is a critical time for patients and, if not carried out effectively and appropriately, can impact on education, mental health and patient outcomes. It has become clear that this is a major issue for patients, their carers and clinicians and that the transition process within and across Europe urgently needs reform.
The European Crohn’s and Colitis Organisation [ECCO] produces and regularly updates several guidelines to provide evidence-based guidance on critical aspects of IBD care to all health care professionals who manage patients with IBD.
A Patient's Guide to Nutrition in Inflammatory Bowel Disease is written by Prof. Darija Vranešić Bender, clinical nutritionist and Prof. Željko Krznarić, gastroenterologist and hepatologist, experts from University Hospital Zagreb, Croatia. The Guide is a result of long collaboration between the Referral center for IBD at the University Hospital Zagreb, Department of gastroenterology and hepatology and Unit of Clinical Nutrition, Croatian Society of Clinical Nutrition Croatian Medical Association and Croatian Crohn's and Colitis Patient Association.
Paediatric inflammatory bowel disease: a multi-stakeholder perspective to improve development of drugs for children and adolescents
The study aims to find potential advanced treatment options for children with inflammatory bowel disease. A 2-day virtual meeting was held on April 14–15, 2021, for multi-stakeholders (clinical academics, patient community, pharmaceutical companies, and regulators) to discuss their perspectives on paediatric drug development for inflammatory bowel disease.
What are the unmet needs and most relevant treatment outcomes according to patients with inflammatory bowel disease? A qualitative patient preference study
Fatigue is an important underecognized clinical problem in patients with IBD and one of the most frequently reported concerns of patients.