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North Greece IBD Patients Society
2007 arrangements have made to form a North Greece IBD Patients Society, which is based in Thessaloniki. |
83 |
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Attica IBD Patients Association
this association was officially established in year 2006 and is based in Athens. The Attica website language is Greek. An English language leaflet about the association is also available by contacting the Attica Association |
84 |
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EMEA - European Medicines Agency (This site may be of special interest to patients seeking information about medicines)
With its headquarters in London the European Medicines Agency (EMEA) main responsibility is the protection and promotion of both public and animal health through the evaluation and supervision of medicines for human and veterinary use.
As part of that role is responsible for the scientific evaluation of applications for European marketing authorisation of medicines under what is known as the centralised procedure.
Click here to learn more and to find wide ranging information about EMEA. Its website is at: www.emea.europa.eu where you will find details of licensed medicines and contact points.
Patient representatives are now included within a number of areas of the European Medicines Agency work including the consultation process and are also appointed to the main management Board of EMEA. A Patient Group link currently on the right of the EMEA homepage gives more details.
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116 |
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Primary Sclerosing Cholangitis
Primary Sclerosing Cholangitis is a liver disease in which the bile ducts progressively reduce in size and can be associated with Colitis. We believe there are few PSC specific support groups across Europe. however there is some PSC info on the EFCCA German member association DDCV site at www.dccv.de in both German and English languages
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118 |
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Patients View and Health & Social Campaigners Network International
This global virtual network for health advocates regularly undertakes patient related surveys, the results of which are shown on the Patient View website.
In early May the fascinating results of the surveys: Challenges facing the health advocacy community have been published, they show firstly the views of health campaigners and secondly of policymakers and the media. |
148 |
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International Alliance of Patient Organisations - IAPO
IAPO is the only global not for profit alliance of national regional and international groups representing patients, families and carers world-wide. IAPO regards a patient as a person with any physical or mental disease, syndrome,disability or disorder. IAPO's vision is that patients throughout the world are at the centre of healthcare. Although founded in 1999 as a networker organisation it is changing to a membership organisation in year 2004 . For more info go to their interactive website. EFCCA is a member of IAPO. |
143 |
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Health First Europe
A new multi-stakeholder cross disease alliance composed of doctors, nurses, patients, industry, academics amongst others all of whom seek to promote patient centred healthcare in Europe of which EFCCA is a member. |
154 |
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Health Consumer Powerhouse
The HCP empowers individuals and groups to take action achieving better healthcare. This European organisation presents Consumer (and patient) information about healthcare and health systems. It aims to undertake surveys and to provide the results including information and benchmarking so that health consumers can make choices among providers and methods and work for improved healthcare. At www.healthpowerhouse.com you can find health news for patients and consumers - users of healthcare systems, also invitations to HCP events |
137 |
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European Patients Forum - EPF
The European Patients Forum was founded during 2003 in response to calls by the European Commission and other EU institutions to have one pan-European patient body to address and be consulted on issues concerning the interests of patients in the European healthcare debate. Start up funding as with many patient groups -especially at the European level - has been scarce although they have been able to represent patients within the EC and EU institutions. The EPF have already organised a number of "Strengthening patient group workshops" with sponsor support. These have included groups from the new member states. EPF is registered in Belgium as a membership organisation. EFCCA has been a member of the EPF since 2004.
At the Year 2005 EPF General Assembly a new Strategy Plan was adopted which is expected to lead to greater independence, further development of their work and increased sources of funding. More information including a list of member organisations can be found at the EPF website |
185 |
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European Disability Forum - EDF
The European Disability Forum represents disabled people in dialogue with the European Union and other European authorities, defending also issues of common concern and promoting equal opportunities for disabled people and to protect their human rights. EDF has > 110 member organisations reflecting a broad geographic base and wide range of disabilities. From 2004 the EDF is also working for people with Chronic Conditions - EFCCA is a member of the EDF. |
148 |
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Association of European Coealic Societies - AOECS
This European Cealic organisation also has an active "umbrella" for European
Coeliac Youth Groups - CYE |
152 |
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ACN
Active Citizenship Network officially began in December of 2001 as the European and international branch of the Italian citizen movement, Cittadinanzattiva (Active Citizenship). Its mission is to promote and support the construction of a European citizenship as an “active citizenship” meaning the exercise of powers and responsibilities of citizens in policy making. This recognizes the prior role of national and local citizens’ organizations and their strengthening as participants in policy making. It also requires an enrichment of the concept of subsidiarity in the European Union to include the relationship between institutions and citizens, in order that institutions favor the free initiative of citizens, both as individuals and as organizations, in carrying out activities directed to the common interest. |
147 |
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