World IBD Day, led by patient organizations representing 36 countries on four continents, is officially celebrated on May 19.
Patient groups from Argentina, Australia, Brazil, Canada, 28 European nations, Israel, Japan, New Zealand and the United States are working together to raise awareness of IBD.
For more information please visit the website: www.worldibdday.org
EFCCA and WORLD IBD DAY
Since 2010 EFCCA has been an active supporter of World IBD Day and its main focus with regard to World IBD Day is to target policy makers of the European institutions such as the European Commission and the European Parliament in order to increase awareness about IBD and to improve life of the over 2.2 million people living with IBD in Europe.
This year EFCCA hosted an awareness raising event in the European Parliament supported by several Members of the European Parliament (MEPs) who will engage in an initiative to create more attention on the difficulties that IBD patients have to face and, in particular on the lack of harmonized recognition, across the 27 European Member States, of the rights and needs of people living with IBD.
Part of this initiative is the preparation and presentation of a Parliamentary Question concerning the rights of people living with IBD to the European Commission.
The support that EFCCA is receiving from the members of the European Parliament is not only a symbolic action but also a clear statement in favor of IBD people and patients in general and it might be the first step of a legislative process able to fill the lack of harmonization and to eradicate the discriminations on IBD in the territory of the European Union.