World IBD Day 2013
On the occasion of World IBD Day 2013 (official date 19 May) the European Federation of Crohn's and Ulcerative Colitis Associations (EFCCA) organised a stakeholder round table discussion at the European Parliament as part of a wider awareness raising campaign within the EU institutions. Representatives from the medical community such as Prof. R Stockbrugger (United European Gastroenterologists) and Prof. M. Vecchi (San Donato Policlinico - Milano) debated along with Members of the European Parliament (MEP Cofferati, MEP Panayotova ) and EFCCA chairman, M Greco about concrete measures and actions that need to be out in place in order to ensure full citizenship of people with IBD.
The debate initiates a public consultation process to develop recommendations for more effective governance to ensure that social, economic and health aspects of people living with IBD are considered in all policies. A Wiki platform will enable stakeholders to feed into the consultation process and the results will be represented at the global awareness raising at a conference taking place in October this year.
You can watch the video at the following link:http://www.efcca.org/index.php/our-activities/latest-news/85-efcca-world-ibd-day-live-streaming
For more general information on World IBD Day please visit the website: www.worldibdday.org
World IBD Day 2012
Since 2010 EFCCA has been an active supporter of World IBD Day and its main focus with regard to Wor
ld IBD Day is to target policy makers of the European instit
utions such as the European Commission and the European Parliament in order to increase awareness about IBD and to improve life of the over 2.2 million people living with IBD in Europe.
This year EFCCA hosted an awareness raising event in the European Parliament supported by several Members of the European Parliament (MEPs) who will engage in an initiative to create more attention on the difficulties that IBD patients have to face and, in particular on the lack of harmonized recognition, across the 27 European Member States, of the rights and needs of people living with IBD.
Part of this initiative is the preparation and presentation of a Parliamentary Question concerning the rights of people living with IBD to the European Commission.
The support that EFCCA is receiving from the members of the European Parliament is not only a symbolic action but also a clear statement in favor of IBD people and patients in general and it might be the first step of a legislative process able to fill the lack of harmonization and to eradicate the discriminations on IBD in the territory of the European Union.
For more information please visit the website: www.worldibdday.org