This month on 19 May World IBD Day is marked in many countries worldwide.
Please check out the World IBD Day website to learn more about and support some of the activities that EFCCA and other other sister organisations from around the globe are organising to raise awareness and to highlight what it means to live with IBD.
World IBD Day website at www.worldibdday.org
The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) and the European Crohn’s and Colitis Organisation (ECCO) have initiated the public awareness campaign “Join the fight against IBD”. Its aim is to enhance the general understanding of the physical and socio-economic burdens of the disease and to accelerate the dissemination of new standards of care of inflammatory bowel diseases (IBD) among health institutions, healthcare providers.
The second event of the Join the fight against IBD campaign took place on February 13-14, in the course of the 8th Congress of ECCO in Vienna (Austria) and focused on the topic:
“Chronic Disease in young people. What does it mean to a teenager for daily life to fight with Crohn’s Disease or Ulcerative Colitis?”
During the global press conference on 13 February, Marco Greco, EFCCA chairman and Daniel Sundstein, EFCCA Youth Group presented the viewpoint of people living with IBD. This was followed by country specific mini press conferences where journalists could interview representatives both from the medical and patient community.
The next day, on 14 February, Marco Greco participated in a panel discussion along with Simon Travis, ECCO president, Dr Rainhold Stockbrugger, chairman of the UEG Public Affairs Committee and Karin Kadenback, Member of the European Parliament.
This White Book on IBD Research funded or promoted by IBD patient associations was presented at the World Symposium – 18 October 2012, Brussels . The White Book aims to become a handbook and reference that IBD patient associations can use for getting new ideas in developing research-support strategies.
[Click here] to download it
EFCCA Clinical Trial News
EFCCA is pleased to bring you some scientific and medical articles related to IBD for your information. EFCCA cannot accept any liability for the accuracy of the information, or for the use of it. Whilst discussion of potential therapies has academic value, EFCCA would like to remind all readers that no claims are made on the effectiveness or safety of any treatment, and that readers should always consult their healthcare professional if they have any concerns or questions, and before taking any action based on the information.