The second issue of the EFCCA Magazine 2016 is now available online.
It includes an update of our latest activities and other inspiring stories and information related to IBD from around the world. We hope you enjoy reading it and please contact us if you would like to contribute to our next issue.
Download Magazine 2/2016
The countdown to World IBD Day on 19 May is starting and many countries have already joined our global campaign in order to create greater awareness about inflammatory bowel disease and its impact on the quality of life for people with IBD.
So far, local and regional authorities from the following countries have agreed to light up famous landmarks in purple in support of our campaign: Europe: UK, France, Poland, Romania, Spain, Italy, Greece, Cyprus, Denmark, Estonia, Portugal and other entries from around the world include : Brazil, Uruguay, Canada, US, New Zealand and Australia.
About World IBD Day 2016
Worldwide, five million people live with Crohn’s disease and ulcerative colitis, conditions known as inflammatory bowel diseases (IBD). In most cases the illness can be kept under control with medication, but despite extensive research there is currently no known cause or cure for IBD and little public understanding of the pain and chronic suffering with which IBD patients courageously cope every day of their lives.
World IBD Day is marked on 19 May each year and is led by patient organisation representing 38 countries on four continents from Argentina, Australia, Brazil, Canada, 28 European nations through the umbrella organisation EFCCA, Israel, Japan, New Zealand to the United States of America. Each year more IBD patient organisations and related NGOs are joining world wide efforts to raise awareness about IBD.
In 2016, the European Crohn´s and Ulcerative Colitis (EFCCA) together with it´s 31 member associations, and other IBD sister organisations from around the world are uniting their efforts around the campaign “Improving quality of life for people with IBD” in order to create greater awareness about inflammatory bowel disease and its impact on the quality of life for people with IBD.
As part of the campaign we are aiming to illuminate famous landmarks (in purple (the colour for World IBD Day) on 19 May 2016. Images of these highlighted landmarks/buildings will be shared on international and national social media channels aimed to create greater awareness around inflammatory bowel disease as well as on the World IBD Day website. (www.worldibdday.org). Additionally, associations around the world are invited to organise supporting events providing detailed information about IBD and issues addressing the quality of life for people with IBD.
After the initial testing phase, this new tool to support patients with Ulcerative Colitis in keeping track of daily changes and improvements with the disease is finally available. If you would like to use the tool, register on the homepage and let us know your impressions.
Please check out the tool at:
The tool is supported by an unrestricted grant from the pharmaceutical company Shire.
Please check out the tool at:
The tool is supported by an unrestricted grant from the pharmceutical company Shire.
Commissioner Borgh addressing EFCCA General Assembly
Commissioner Borgh from the European Commission´s Directorate for Health and Consumers welcomed delegates to the 24 General Assembly of EFCCA which took place in Graz (Austria) from 3-6 April 2014.
In his pre-recorded speech Commissioner Borgh acknowledged and applauded the work of EFCCA and showed his support to the efforts that the national associations and EFCCA were undertaking to improve the lives of people with IBD.
The link below is a small video illustrating the work that was being done in those two days.
All documents related to the GA are available to our members in the Members Only Section of our website.
EFCCA Clinical Trial News
EFCCA is pleased to bring you some scientific and medical articles related to IBD for your information. EFCCA cannot accept any liability for the accuracy of the information, or for the use of it. Whilst discussion of potential therapies has academic value, EFCCA would like to remind all readers that no claims are made on the effectiveness or safety of any treatment, and that readers should always consult their healthcare professional if they have any concerns or questions, and before taking any action based on the information.