Symptom Tracker

YourUC.com

 

This is a useful new tool - currently in test phase - to support patients with Ulcerative Colitis. If you would like to test the tool, you will need to introduce the following information:

 

username: This email address is being protected from spambots. You need JavaScript enabled to view it.

password: guest

 

Please check out the tool at:

 

http://youruc.sytes.net/my-uc-log/

 

Any feedback please send  to Isabella Haaf: This email address is being protected from spambots. You need JavaScript enabled to view it.

 

The tool is supported by an unrestricted grant from the pharmceutical company Shire. 

EFCCA Annual General Meeting 2014

Commissioner Borgh addressing EFCCA General Assembly

 

Commissioner Borgh from the European Commission´s Directorate for Health and Consumers welcomed delegates to the  24 General Assembly of EFCCA which took place in Graz (Austria) from 3-6 April 2014.

 

In his pre-recorded speech Commissioner Borgh acknowledged and applauded the work of EFCCA and showed his support to the efforts that the national associations and EFCCA were undertaking to improve the lives of people with IBD.

 

The link below is a small video illustrating the work that was being done in those two days. 

 

http://youtu.be/RQekBWWXCNU

 

All documents related to the GA are available to our members in the Members Only Section of our website. 

 

http://members.efcca.org 

 

 

IBD11

IBD11 - unleash your knowledge

 

EFCCA has been invited to speak at the IBD 11 meeting that took place in Prague (14-16 November). The meeting was organised by the pharmaceutical company Ferring and was attended by over 850 physicians from over 50 countries. Marco Greco, EFCCA chairman, presented during the opening session the work of EFCCA and the patient perspective. He put forward strong arguments for close cooperation between patients and doctors in order to ensure a better quality of life for people living with IBD. The meeting was an excellent opportunity for EFCCA to exchange information, to learn about the latest developments in IBD and to make new contacts and refresh exisiting links.

 

Download presentation

 

For more information please contact the EFCCA office. 

From EU citizenship to IBD-zenship

“Equal Rights for Citizens with IBD” was the main message emerging from the conference organized by EFCCA in cooperation with the European Crohn’s and Colitis Organisation (ECCO) and United European Gastroenterologists (UEG) which took place in the European Parliament on 17 October.

 

The conference saw a huge participation of over 70 delegates including representatives from the EFCCA national IBD associations, representatives from other European networks dealing with patients’ concerns (European Patient Forum, AGORA, etc), EU officials and representatives from the medical professions.

 

Both the host of the event, MEP Cofferati as well as Vice President of the European Parliament, MEP Miguel Angel Martinez together with a considerable number of other MEPs showed their strong support for better integrating the rights of people living with IBD. The message of solidarity and cooperation was also echoed by the three organisation organising the event (EFCCA, ECCO and UEG) who called for actions to ensure equal access not only to better treatment option and health care services but also to education and the labour market.

 

Conference material:

Agenda

EU law against disability discrimination, Alvaro Oliveira, European Commission, DG Justice 

Health care and research, Simon Travis, ECCO President

What can the EU and the UEG contribute, R. Stockbrügger, UEG

European Agency for Development in Special Needs Education (EADSNE), Mary Kyriazopoulou

Presentation youth and education panel, Maurio Vecchi, University of Milan

 

Link to stream of the event:

http://www.efcca.org/index.php/our-activities/latest-news/92-october-conference

 

EFCCA and World IBD Day 2013: the video

Videoclip from our World IBD Day event at the European Parliament (16 May 2013)

Read more: EFCCA and World IBD Day 2013: the video

Subcategories

  • Clinical Trials

     

    EFCCA Clinical Trial News

    EFCCA is pleased to bring you some scientific and medical articles related to IBD for your information. EFCCA cannot accept any liability for the accuracy of the information, or for the use of it. Whilst discussion of potential therapies has academic value, EFCCA would like to remind all readers that no claims are made on the effectiveness or safety of any treatment, and that readers should always consult their healthcare professional if they have any concerns or questions, and before taking any action based on the information.