IBD11 - unleash your knowledge
EFCCA has been invited to speak at the IBD 11 meeting that took place in Prague (14-16 November). The meeting was organised by the pharmaceutical company Ferring and was attended by over 850 physicians from over 50 countries. Marco Greco, EFCCA chairman, presented during the opening session the work of EFCCA and the patient perspective. He put forward strong arguments for close cooperation between patients and doctors in order to ensure a better quality of life for people living with IBD. The meeting was an excellent opportunity for EFCCA to exchange information, to learn about the latest developments in IBD and to make new contacts and refresh exisiting links.
For more information please contact the EFCCA office.
“Equal Rights for Citizens with IBD” was the main message emerging from the conference organized by EFCCA in cooperation with the European Crohn’s and Colitis Organisation (ECCO) and United European Gastroenterologists (UEG) which took place in the European Parliament on 17 October.
The conference saw a huge participation of over 70 delegates including representatives from the EFCCA national IBD associations, representatives from other European networks dealing with patients’ concerns (European Patient Forum, AGORA, etc), EU officials and representatives from the medical professions.
Both the host of the event, MEP Cofferati as well as Vice President of the European Parliament, MEP Miguel Angel Martinez together with a considerable number of other MEPs showed their strong support for better integrating the rights of people living with IBD. The message of solidarity and cooperation was also echoed by the three organisation organising the event (EFCCA, ECCO and UEG) who called for actions to ensure equal access not only to better treatment option and health care services but also to education and the labour market.
EU law against disability discrimination, Alvaro Oliveira, European Commission, DG Justice
Health care and research, Simon Travis, ECCO President
What can the EU and the UEG contribute, R. Stockbrügger, UEG
European Agency for Development in Special Needs Education (EADSNE), Mary Kyriazopoulou
Presentation youth and education panel, Maurio Vecchi, University of Milan
Link to stream of the event:
This month on 19 May World IBD Day is marked in many countries worldwide.
Please check out the World IBD Day website to learn more about and support some of the activities that EFCCA and other other sister organisations from around the globe are organising to raise awareness and to highlight what it means to live with IBD.
World IBD Day website at www.worldibdday.org
EFCCA Clinical Trial News
EFCCA is pleased to bring you some scientific and medical articles related to IBD for your information. EFCCA cannot accept any liability for the accuracy of the information, or for the use of it. Whilst discussion of potential therapies has academic value, EFCCA would like to remind all readers that no claims are made on the effectiveness or safety of any treatment, and that readers should always consult their healthcare professional if they have any concerns or questions, and before taking any action based on the information.