EFCCA Magazine 2/2016

The second issue of the EFCCA Magazine 2016 is now available online.

It includes an update of our latest activities and other inspiring stories and information related to IBD from around the world. We hope you enjoy reading it and please contact us if you would like to contribute to our next issue.
 

Download Magazine 2/2016

World IBD Day 2016

The countdown to World IBD Day on 19 May is starting and many countries have already joined our global campaign in order to create greater awareness about inflammatory bowel disease and its impact on the quality of life for people with IBD.

 

So far, local and regional authorities from the following countries have agreed to light up famous landmarks in purple in support of our campaign: Europe: UK, France, Poland, Romania, Spain, Italy, Greece, Cyprus, Denmark, Estonia, Portugal and other entries from around the world include : Brazil, Uruguay, Canada, US, New Zealand and Australia.

 

We expect many more to join us in May. For more information please follow us on Facebook or see the World IBD Day website : www.worldibdday.org

 

About World IBD Day 2016

Worldwide, five million people live with Crohn’s disease and ulcerative colitis, conditions known as inflammatory bowel diseases (IBD). In most cases the illness can be kept under control with medication, but despite extensive research there is currently no known cause or cure for IBD and little public understanding of the pain and chronic suffering with which IBD patients courageously cope every day of their lives.

 

World IBD Day is marked on 19 May each year and is led by patient organisation representing 38 countries on four continents from Argentina, Australia, Brazil, Canada, 28 European nations through the umbrella organisation EFCCA, Israel, Japan, New Zealand to the United States of America.  Each year more IBD patient organisations and related NGOs are joining world wide efforts to raise awareness about IBD.

 

In 2016, the European Crohn´s and Ulcerative Colitis (EFCCA) together with it´s 31 member associations, and other IBD sister organisations from around the world are uniting their efforts around the campaign “Improving quality of life for people with IBD”  in order to create greater awareness about inflammatory bowel disease and its impact on the quality of life for people with IBD.

As part of the campaign we are aiming to illuminate famous landmarks (in purple (the colour for World IBD Day) on 19 May 2016. Images of these highlighted landmarks/buildings will be shared on international and national social media channels aimed to create greater awareness around inflammatory bowel disease as well as on the World IBD Day website. (www.worldibdday.org).  Additionally, associations around the world are invited to organise supporting events providing detailed information about IBD and issues addressing the quality of life for people with IBD.

 

For more information please contact Isabella Haaf at This email address is being protected from spambots. You need JavaScript enabled to view it.

 

 

Symptom Tracker

MyUC.eu

After the initial testing phase, this new tool to support patients with Ulcerative Colitis in keeping track of daily changes and improvements with the disease is finally available. If you would like to use the tool, register on the homepage and let us know your impressions.

Please check out the tool at:

http://myuc.eu/

 

Any feedback please send  to Isabella Haaf: This email address is being protected from spambots. You need JavaScript enabled to view it.

The tool is supported by an unrestricted grant from the pharmaceutical company Shire.

Symptom Tracker

YourUC.com

 

This is a useful new tool - currently in test phase - to support patients with Ulcerative Colitis. If you would like to test the tool, you will need to introduce the following information:

 

username: This email address is being protected from spambots. You need JavaScript enabled to view it.

password: guest

 

Please check out the tool at:

 

http://youruc.sytes.net/my-uc-log/

 

Any feedback please send  to Isabella Haaf: This email address is being protected from spambots. You need JavaScript enabled to view it.

 

The tool is supported by an unrestricted grant from the pharmceutical company Shire. 

EFCCA Annual General Meeting 2014

Commissioner Borgh addressing EFCCA General Assembly

 

Commissioner Borgh from the European Commission´s Directorate for Health and Consumers welcomed delegates to the  24 General Assembly of EFCCA which took place in Graz (Austria) from 3-6 April 2014.

 

In his pre-recorded speech Commissioner Borgh acknowledged and applauded the work of EFCCA and showed his support to the efforts that the national associations and EFCCA were undertaking to improve the lives of people with IBD.

 

The link below is a small video illustrating the work that was being done in those two days. 

 

http://youtu.be/RQekBWWXCNU

 

All documents related to the GA are available to our members in the Members Only Section of our website. 

 

http://members.efcca.org 

 

 

Subcategories

  • Clinical Trials

     

    EFCCA Clinical Trial News

    EFCCA is pleased to bring you some scientific and medical articles related to IBD for your information. EFCCA cannot accept any liability for the accuracy of the information, or for the use of it. Whilst discussion of potential therapies has academic value, EFCCA would like to remind all readers that no claims are made on the effectiveness or safety of any treatment, and that readers should always consult their healthcare professional if they have any concerns or questions, and before taking any action based on the information.