15 November 2016
International conference on Patient Safety, European Parliament, Brussels
EFCCA is out in front on the issues around patient safety, rights, information and empowerment. The public consultation launched by the European Commission on the “Future EU agenda on quality of health care with a special emphasis on patient safety” shows the importance of starting an open debate on these topics, particularly concerning biosimilars treatment and patients’ information and knowledge understanding and awareness.
Within this framework EFCCA is organizing a international conference to take place on 15 November 2016 at the European Parliament in Brussels in order to support patients’ right to information and knowledge, to ensure their access to drugs and to health care and to include them in the decision making processes. Patient empowerment is a strategic objective that may lead to a better knowledge of unmet needs and to reduce health inequalities in the EU.
Outcomes of the BAB survey as well as the take home messages from the training held in Barcelona in February 2016 will offer a wide overview of patients' position and priorities.
The third issue of the EFCCA Magazine 2016 is now available online. We hope you enjoy reading about our latest activities, news from our members and other interesting articles related to IBD such as the Invisible Body (cover photo), latest IBD research, World IBD Day events and many more. A big thanks for your contributions!!!!
New survey on Iron deficiency!
We would like to draw your attention to a promising new study on iron deficiency which aims to better understand the challenges that people with IBD are facing on a daily basis, in particular as concerns iron deficiency and iron deficiency anaemia.
The survey will contribute to raising awareness of the importance of early detection and appropriate treatment of iron deficiency and iron deficiency anaemia and ultimately lead to a better quality of life of people with IBD.
If you have Crohn´s disease of Ulcerative Colitis and reside in any of the EU members states we kindly ask your time to fill in this anonymous survey which should take you about 15 minutes. Thanks for your participation!!!
Link to the survey: https://gpcms.habcommunity.