Conference at the European Parliament, 17 October 2013
“Equal Rights for Citizens with IBD” was the main message emerging from the conference organized by EFCCA in cooperation with the European Crohn’s and Colitis Organisation (ECCO) and United European Gastroenterologists (UEG) which took place in the European Parliament on 17 October.
The conference saw a huge participation of over 70 delegates including representatives from the EFCCA national IBD associations, representatives from other European networks dealing with patients’ concerns (European Patient Forum, AGORA, etc), EU officials and representatives from the medical professions.
Both the host of the event, MEP Cofferati as well as Vice President of the European Parliament, MEP Miguel Angel Martinez together with a considerable number of other MEPs showed their strong support for better integrating the rights of people living with IBD. The message of solidarity and cooperation was also echoed by the three organisation organising the event (EFCCA, ECCO and UEG) who called for actions to ensure equal access not only to better treatment option and health care services but also to education and the labour market.
EU law against disability discrimination, Alvaro Oliveira, European Commission, DG Justice
Health care and research, Simon Travis, ECCO President
What can the EU and the UEG contribute, R. Stockbrügger, UEG
European Agency for Development in Special Needs Education (EADSNE), Mary Kyriazopoulou
Presentation youth and education panel, Maurio Vecchi, University of Milan
Link to stream of the event:
The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) and the European Crohn’s and Colitis Organisation (ECCO) have initiated the public awareness campaign “Join the fight against IBD”. Its aim is to enhance the general understanding of the physical and socio-economic burdens of the disease and to accelerate the dissemination of new standards of care of inflammatory bowel diseases (IBD) among health institutions, healthcare providers.
The second event of the Join the fight against IBD campaign took place on February 13-14, in the course of the 8th Congress of ECCO in Vienna (Austria) and focused on the topic:
“Chronic Disease in young people. What does it mean to a teenager for daily life to fight with Crohn’s Disease or Ulcerative Colitis?”
During the global press conference on 13 February, Marco Greco, EFCCA chairman and Daniel Sundstein, EFCCA Youth Group presented the viewpoint of people living with IBD. This was followed by country specific mini press conferences where journalists could interview representatives both from the medical and patient community.
The next day, on 14 February, Marco Greco participated in a panel discussion along with Simon Travis, ECCO president, Dr Rainhold Stockbrugger, chairman of the UEG Public Affairs Committee and Karin Kadenback, Member of the European Parliament.