The second issue of the EFCCA Magazine 2015 is now available online.
It includes interesting information about our activities at EFCCA as well as inspiring stories and information on IBD from around the world. We would like to highlight our article concerning World IBD Day that is being celebrated this month on 19 May. Furthermore, our EFCCA Youth Group has also made a challenging contribution on the subject of exploring alternatives to preganancy when you have IBD: the open and frank interviews will give you a better understanding of what these 2 women had to go through.
Finally, there is also a scientific article about a new drug that has so far shown promising results and which has become the talk of the IBD community.
Enjoy the reading and many thanks to those who have contributed to it!!!!
Download Magazine 2/2015
This year the EFCCA General Assembly will take place in Brussels from 29th to 30th May 2015. It will be our 25 th anniversaryand a good moment to reflect on our mission and work accomplished. On the second day we are organising a Symposium on Patient Safety which is open to the public. An agenda of this meeting will be made available shortly.
More information about the GA can be found on the Members Only Section of our website at: http://members.efcca.org/
On 31 st May, a day after the GA, EFCCA will also participate at the Brussels half marathon as part of our World IBD Day activities. A dedicated team of around 40 runners will be running under the purple colours of the EFCCA team in order to raise awareness about Crohn´s disease and Ulcerative Colitis. More info
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As part of the World IBD Day celebrations EFCCA is organising participation at the Brussels 20 km marathon in order to raise awareness about Crohn´s Disease and Ulcerative Colitis, collectively known as inflammatory bowel disease (IBD), which affect over 3 million people in Europe.
The 20 km marathon will take place on 31 May at 10 am in Brussels, Belgium. Starting point is at the Parc du Cinquantenaire.
So far we have over 40 runners registered from 13 European countries including a mix of professional and amateur runners made up by patients, doctors, friends and family members.
EFCCA will also be presented with an information booth at the starting point of the race. The booth will be run by a team of volunteers and supporters wearing the purple t-shirts of the EFCCA team and colour of World IBD Day. We are going to distribute purple ribbons and materials to inform people about IBD and about EFCCA activities.
EFCCA would like to thank the 20Km Brussels marathon staff for their support and assistance.
Come and join us too!!!
If you are unable to participate in the race but would like to sponsor participation of an international runner we are also making available vouchers for companies and stakeholders.
BAB - Biologics & Biosimilars Survey
The European Federation of Crohn´s and Colitis Associations (EFCCA) invites you to participate in this important survey on Biosimilars.
The purpose of the survey is to assess patients´ knowledge about biosimilars and to find out to what extent patients are aware of the issues involved around biosimilars medicines. The results of the survey will allow us to elaborate a common EFCCA position to effectively advocate for better patients rights with the medicine licensing authorities and relevant governments institutions.
The questionnaire consists of 14 questions and will require approximately 10 minutes to complete.
For Bulgarian, Greek and Serbian please follow this link and chose your relevant language.
This questionnaire has been designed in collaboration with Prof. Laurent Peyrin-Biroulet and his team - dept of Hepato-Gastroenterology CHU in Nancy.
Translations, technical tools and dissemination material are under unrestricted grant from Abbvie.
Results of the EFCCA led IMPACT survey have been published in the latest issue of the Journal Crohn´s and Colitis. In the article entitled "IBD and health-related quality of life- Discovering the true impact" some of the main findings from the IMPACT survey have been highlighted. The results of this survey can be used in defining strategic priorities and planning projects and awareness raising activities. The unmet needs of IBD patients can be better demonstrated and communicated to the public, health service managers and politicians.
The Journal of Crohn's and Colitis is the official journal of the European Crohn's and Colitis Organisation (ECCO), and is concerned with the dissemination of knowledge on clinical, basic science and innovative methods related to inflammatory bowel diseases. The journal publishes original articles, review papers, editorials, leading articles, view points, case reports, innovative methods and letters to the editor.
The above mentioned article was written by Sanna Lönnfors in collaboration with Severine Vermeire, Marco Greco, Daan Hommes, Chayim Bell and Luisa Avedano.
Read more about IMPACT