Navigating with AMICI

AMICI, the Italian IBD association has just organized an original and fantastic summer camp under the title "navigating with AMICI".

 

A small group of youngsters with IBD were invited to spend one week on a sailing boat for a unique summer experience. Whilst learning about sailing and visiting interesting places of touristic interest along the Italian coast they most importantly had the chance to forget for a while  their worries and to be  in a supportive environment. The boat with the youngsters was accompanied by another boat with a crew made up by doctors and some of the organizer in case of emergency.

 

The initiative was supported by the regional authority of Tuscany and the provincial authority of Livorno and mayors welcomed the kids in the cities visited by the kids.

 

The trip has just completed with everyone safe and with very happy smiles on their faces. We cant wait to share the first impressions from our young ones. In the meantime we leave you with some photos taken during the trip..

 

For more information:

 

http://www.amiciitalia.net/

 

 

 

 

IMPACT survey

New IMPACT publication

 

On the occasion of World IBD Day, we are making available our latest publication of the IMPACT survey.

 

The survey was a joint project of EFCCA and its national member associations. It was launched in November 2010 and closed in August 2011. IMPACT II is now on-going in several other countries in and outside Europe.

 

The main aim of the survey was to obtain an international perspective of the impact of Inflammatory Bowel Disease (IBD) on patients’ lives. 4,670 online responses that had been received by the close of the survey were included in the analysis. 

 

The survey has received wide recognition from the scientific community and its poster presentation at the ECCO Congress in 2012 was awarded a „poster of distinction ribbon”. It was also recently published in the Journal of Crohn ́s and Colitis.

 

DOWNLOAD latest IMPACT publication

 

IMPACT FACTSHEETS

 

 

 


IMPACT survey

 

 

 

Damage and Disability

 


Diagnosis and health services

 


Treatment

 



Daily Life 

 


Education and Career

 


Other surveys

 

 
EFCCA Recommendations

 


What is IBD?

 

 

 

 

 

 

 

 

 

 

The survey was supported by an unrestricted educational grant from Abbott.

EFCCA Magazine Second Issue 2014

The second issue of the EFCCA Magazine 2014  is now available. We hope you enjoy reading about our latest activities, news from our members and other interesting articles related to IBD.

 

We would like to especially highlight two interesting interviews looking at the subject of IBD and parenthood as well as an interview with Leon Pecasse, former EFCCA chairperson who has recently retired at the age of 84 from his professional and voluntary activities. 

 

Many thanks to those who have contributed to it.

Download EFCCA Magazine Issue 2/2014

World IBD Day 2014

Running together to raise awareness on IBD

 

On 18 May 2014 the European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA)  will participate in the Brussels half marathon to raise awareness about Crohn´s Disease and ulcerative colitis, collectively known as inflammatory bowel disease (IBD). IBD are two serious, chronic digestive diseases which which affect over 3 million people in Europe. IBD can be kept under control with medication, but despite extensive research there is currently no known cause or cure for IBD.

 

A small committed team of 15 runners representing 11 IBD patient associations from Belgium, Bulgaria,Denmark, Finland, Germany, Ireland, Italy, Portugal, Romania, Slovenia and Spain will face the challenging run of 20 km through the city centre of Brussels which will start at 10 am on the 18 May. “We want to show the world that having a chronic disease does not mean you cannot participate in an active and fulfilling life “ says Martin Kojinkov, one of the EFCCA runners and member  of the EFCCA Executive Board.

 

With this event EFCCA wants to highlight the impact IBD is having on the quality of life of many people in Europe and worldwide. A survey EFCCA conducted in 16 European countries, illustrates the daily difficulties that people with IBD are facing not only as far as concerns their health but also their social, intimate and economic situations. New results from the IMPACT study will be presented during World IBD Day and will be available on the EFCCA website.

 

The event in Brussels forms part of other worldwide activities that are being undertaken by IBD sister associations from four continents to mark World IBD Day (official date on 19 May). 

EFCCA BREAKING NEWS - SPORT & IBD FROM UK AN EXCITING MAY 2012

EFCCA is pleased to inform you that Crohn’s and Colitis UK is organising an impressive awareness campaign taking in place in May, part of the WORLD IBD DAY set of events all over the world!

The UK's theme this year is IBD Sports and Fitness, using the public interest in the London Olympics to highlight how IBD affects fitness and participation in Sport.  Through a special website Crohn's and Colitis UK conducted a survey of nearly 1,000 members which found that about one third do not take part in any exercise or sporting activities and a quarter said their fitness was low. 80% had had to give up a sport at some time either temporarily or permanently. 

As part of the UK media campaign five sporting champions who have IBD have spoken about their life with Crohn’s or Colitis. You can see their stories on the campaign website at www.ibdsportsandfitness.co.uk

Read more: EFCCA BREAKING NEWS - SPORT & IBD FROM UK AN EXCITING MAY 2012 

EFCCA breaking news nr. 9/2011

 

We are delighted to announce that EFCCA moved into a brand new, independent and bigger office!

It is located in Rue des Chartreux 33-35 in Brussels, very close to the “old” one.

Read more: EFCCA breaking news nr. 9/2011

EFCCA breaking news nr.8 /2011

FEEDBACK FROM THE WORLD IBD DAY

Brussels, 19 May 2011

The sky is cloudy but weather forecasts are not very bad… fingers crossed.

9.45 AM – Marco Greco, Isabella Haaf and myself enter the Berlaymont building a little bit excited.

At 10.00 AM - Mrs Darmanin the head of the Cabinet of the Commissioner on Health and Consumers’ protection, Mr Dalli, is waiting for us.

It is the first time that EFCCA has the chance of presenting its mission and goals. More than one hour meeting: a very productive one, the agreement of seeking for stronger collaboration and the promise of visiting us in autumn.

Read more: EFCCA breaking news nr.8 /2011

EFCCA breaking news nr. 7/2011

EFCCA IS GLAD TO ANNOUNCE THAT THE WORLD IBD DAY WILL BE CELEBRATED IN BRUSSELS ON THE 19TH OF MAY ! IT’’S THE FIRST TIME WE ALL HAVE THE CHANCE TO RAISE AWARENESS AND GIVE PEOPLE WITH IBD A LOUDER VOICE IN EUROPE!

Read more: EFCCA breaking news nr. 7/2011