EFCCA’s main objective is to improve the well-being of people with IBD of all ages, diagnosed with Inflammatory Bowel Disease (IBD) by:
Encouraging and facilitating the exchange of information and the promotion of cross-frontier activities, including knowledge exchange with Crohn’s and colitis organisations in other parts of the world.
Assisting in establishing new associations in European countries where they do not exist yet.
Working actively at the European level with and for the EFCCA member associations to improve the quality of life and the quality of care for those with IBD of all ages, their partners, families and friends. Offer them support and information. Cooperating with doctors, health professionals and other related organisations to reach these aims.
Raising public awareness both of IBD, the European patients concerns and EFCCA. Also broaching the issue of the taboo which surrounds bowel disease.
Encouraging scientific, social and other research into the causes, diagnosis and treatment of inflammatory bowel disease.
Encouraging patients and their families to travel and to meet with people from EFCCA member associations and other nationalities, through the provision of relevant information and advice.
Promoting and foster equality of opportunity in all aspects of our work.
Working with patients, doctors and nurses in European countries where no national Crohn’s and colitis patient groups exist.
A preliminary remark: EFCCA is the voice of patients suffering from IBD, nevertheless we use to name ourselves people with IBD, being IBD not to be taken as the whole of our condition, but a part, sometimes predominant, which affects our daily life, our family’s and relatives’ ones.
To give a louder voice and a higher visibility to people with IBD in Europe
To improve the well-being of people with IBD of all ages
To include health policy and healthcare issues within the wider spectrum of social, economic, cultural and environmental policies under the WHO and EC label “Health in all policies”
To reduce health inequalities
To empower patients’ associations and include their position in the decision making processes both at national and EU level
To enlarge networking at worldwide level
To work on a basis of full transparency and independency
To develop position and policy papers representing people with IBD needs and priorities
To design and realise sensibilisation campaigns and advocacy plans in collaboration with the European Commission, the European Parliament, the WHO
To strengthen the links and the collaboration among the National Associations