This year, for World IBD Day, EFCCA would like to promote the discussion on IBD and wellbeing.
We see often that people with IBD do not really tell their story. They might live with pain and think it´s just part of the disease. They might feel bad about their self-image but do not talk about it. They might have good medical scores related to their disease, but their quality of life is poor.
With our awareness raising campaign we want to start a dialogue and discussions on the psychological impact of the disease. Through a social media awareness raising campaign leading up to 19 May we want to show the hidden facts about what it is like to live with IBD. Under the hashtag #breakthesilence we want to show the world how a person with IBD really feels.
Once we have initiated the dialogue we would like to take the main issues raised to Health Care Providers and other stakeholders for them to listen and to find together solutions that will have a meaningful impact on a person´s quality of life.
Please get in contact if you would like to use our graphic material. (firstname.lastname@example.org).
How to get involved?
1) Share your events with us!
If you are part of a patient organisation please let us know your plans for World IBD Day 2021. Write to email@example.com
2) Become a Supporter!
If you are an IBD activitist, or your company or organisation wants to support our cause please join our campaign!
3) Download our communication material
4) Join us on Social Media!
Help us become more visible! Tag your posts with #worldibdday2021 #breakthesilence, use our facebook banner for World IBD Day world-ibd-day-2021-facebook-cover.png
We would like to hear from you! Talk!
How does the disease impact on you psychologically? What are the masks that you are wearing on a daily basis? How do you really feel? Are there things you feel you would like to talk to your doctor about but feel there is not enough time or it does not seem important?
Your story format should be around 350-500 words together with a photo (or a video clip no longer than 30 sec to 1 min). We would share your story (video or photo) on EFCCA´s social media channels (Facebook and Twitter) and ultimately take
Once we have initiated the dialogue we would like to take the main issues raised to Health Care Providers and other stakeholders for them to listen and watch to find together solutions that will have a meaningful impact on a person´s quality of life.