Document: informative

Survey for UC patients

Survey for UC patients

If you have UC and would like to share your educational needs as concerns disease knowledge and management please participate in this short survey.

The questionnaire is part of a project granted by the Erasmus University in Rotterdam in which EFCCA and ECCO are collaborating. The project aims to elaborate a set of 3 training modules of patients and physicians taking into account the survey outcomes as well as discussions from a focus group meeting that will take place end of April.

Life after IBD diagnosis

For many people, diagnosis with inflammatory bowel disease (IBD) can be an overwhelming and confusing time. Not just for the person with the condition, but also for those who are close to them.

Being able to move forward following a diagnosis is important. People need to have the confidence to know that they can live well with their condition. “My IBD Journey: life after IBD diagnosis” is based on the real-life experiences of people with IBD and provides advice and suggested positive steps people can take as they look to the future.

Transition care in IBD

EFCCA CEO,  Luisa Avedano, participated at the press conference on Paediatric Digestive Health during the UEG Week in Vienna on 17 October 2016. She presented the Transition to Adult Care project that was being implemented by the EFCCA Youth Group and which aimed to better understand the needs of young people with IBD as concerns transitory care.

The press conference was organised following the publication of the UEG´s report on Paediatric Digestive Health Across Europe.

For more information please contact our offices.

"From Health System Sustainability To Promoting Inclusive Growth" - Conference Report

The Lithuanian Health Forum Conference held in Vilnius was organised to consolidate and address the policies, goals, and objectives of the Vilnius Declaration’s “Sustainable Health Systems for Inclusive Growth”, which was developed and circulated internationally during the 2013 European Council Presidenc

EFCCA Magazine 3/2016

The third issue of the EFCCA Magazine 2016 is now available online. We hope you enjoy reading about our latest activities, news from our members and other interesting articles related to IBD such as the Invisible Body (cover photo), latest IBD research, World IBD Day events and many more. A big thanks for your contributions!!!!


The European Federation of Crohn's & Ulcerative Colitis Associations is an umbrella organisation representing 33 national patient associations.  EFCCA aims to improve the quality of life for people with IBD and give them a louder voice and higher visibility across Europe and beyond. 

Its headquarter is based in Brussels and has three staff members that work alongside the Executive Board which consists of 6 elected representatives from its member associations.