The video ¨The IBD Journey¨ highlights the need for multi-disciplinary care in treating IBD, from a range of healthcare providers and carers, including doctors, nurses, psychologists and nutritionists.
We proudly present the second issue of the EFCCA Magazine 2017. In this edition you will find a wide range of information about World IBD Day, EFCCA activities, the EFCCA Youth Group, member news and other inspiring stories from partners and IBD activists.
The first issue of the EFCCA Magazine 2017 is now available online. Enjoy reading about our latest activities, news from our members and other interesting articles related to IBD. Many thanks to those who have contributed to it!!!!
For many people, diagnosis with inflammatory bowel disease (IBD) can be an overwhelming and confusing time. Not just for the person with the condition, but also for those who are close to them.
Being able to move forward following a diagnosis is important. People need to have the confidence to know that they can live well with their condition. “My IBD Journey: life after IBD diagnosis” is based on the real-life experiences of people with IBD and provides advice and suggested positive steps people can take as they look to the future.
Patient representatives participate in open debate on patient safety issues and right to information at the European Parliament
EFCCA CEO, Luisa Avedano, participated at the press conference on Paediatric Digestive Health during the UEG Week in Vienna on 17 October 2016. She presented the Transition to Adult Care project that was being implemented by the EFCCA Youth Group and which aimed to better understand the needs of young people with IBD as concerns transitory care.
The press conference was organised following the publication of the UEG´s report on Paediatric Digestive Health Across Europe.
For more information please contact our offices.
The third issue of the EFCCA Magazine 2016 is now available online. We hope you enjoy reading about our latest activities, news from our members and other interesting articles related to IBD such as the Invisible Body (cover photo), latest IBD research, World IBD Day events and many more. A big thanks for your contributions!!!!
The European Federation of Crohn's & Ulcerative Colitis Associations is an umbrella organisation representing 34 national patient associations. EFCCA aims to improve the quality of life for people with IBD and give them a louder voice and higher visibility across Europe and beyond.
Its headquarter is based in Brussels and has three staff members that work alongside the Executive Board which consists of 6 elected representatives from its member associations.