Document: informative

The Indirect Costs of IBD

New survey on the indirect costs of IBD. The aim of the study is to assess the influence of IBD on the patients productivity at work and relevant costs for society. www.ibdcosts.eu Within the framework of World IBD Day 2019 the European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA) is supporting a new study which aims to assess the indirect or invisible costs of Crohn’s disease and ulcerative colitis, collectively known as Inflammatory Bowel Disease (IBD).

Surgery in IBD

There are some topics that are hard to discuss, for which people may not want to share their opinions.  Surgery in people with Inflammatory Bowel Disease (IBD) is one of these neglected topics. It is, howwever, extremely relevant and important to collect information about the perception of surgery, the impact on the quality of life, and worries baout it.

We are looking for people with IBD who can provide us their views about surgery, by completeing a survey that lasts about 15 minutes.

Open Call for Patient Input – Joint Assessment on a medicinal product for UC.

EUnetHTA deems patient involvement very important in the production of Joint Assessment reports. We recognise that patients and those who support them have unique knowledge about what it is like to live with a specific disease or medical condition. We believe patient groups can help us understand patients’ unique perspectives by collecting and presenting patients’ and carers/care-givers’ views and experiences by engaging with a wide range of patients.

EFCCA General Assembly

The EFCCA General Assembly took place in Prague from 24-26 May 2019 bringing together nearly 60 delegates from 31 patient associations. The event was hosted by our colleagues from Pacienti IBD (Czech Republic). In the coming days we will make available several of the presentations and other materialdn of the GA.

View Public Presentations: