Document: informative

Patient Advocacy Worshop

Rome, 10-11 November 2017,  Regional Patient Advocacy Workshop on Biologics and Biosimilars

Delegates from 15 patient associations representing immune modulated disease groups in the Mediterranean area gathered in Rome from 10-11 November 2017 at the Patient Advocacy Workshop in order to discuss experiences and local best practice around the issues concerning Biologics and Biosimilars.

Report from Nutrition Conference

The report from the ¨Optimal nutritional care for all¨conference is now available for download. The conference was organised by the European Nutrition for Health Alliance’s (ENHA) Optimal nutritional care for all (ONCA) campaign, the Patients Network for Medical Research and Health (EGAN) together with the European Patients Forum (EPF) and the Platform Patients and Food Netherlands , organized a conference for EU patients’ groups to discuss the topic of nutrition. 

EFCCA Magazine 3/2017

The third issue of the EFCCA Magazine 2017 is now available online.
It includes interesting information about our activities within EFCCA and the EFCCA Youth Group as well as inspiring stories and information from NGOs, associationson healthcare providers and others working in health related issues and/or in particular IBD. Enjoy the reading and many thanks to those who have contributed to it!!!!

Download the magazine: efccamagazine_3_2017_web1.pdf

BAB Survey

BAB survey

In late 2014 we launched a survey entitled BAB – Biologics and Biosimilars to assess patients knowledge about biosimilars and to find out to what extent patients are aware of the issues involved around biosimilars medicines. The scientific coordinator of the BAB survey is Professor Laurent Peyrin- Biroulet -  from the Department of Hepato-Gastroenterology CHU in Nancy, France.

The IBD Journey

The video ¨The IBD Journey¨ highlights the need for multi-disciplinary care in treating IBD, from a range of healthcare providers and carers, including doctors, nurses, psychologists and nutritionists.