Is there a better way to optimise disease control for patients with ulcerative colitis? A new study aims to find out
Achieving and maintaining effective control of ulcerative colitis is the goal of treatment, but, as all patients know, it can be a challenge. Current management of mild-to-moderate ulcerative colitis is typically guided by symptoms, with therapy increased during a flare and decreased when controlled.
EFCCA has been collaborating with Medscape on a training session about biosimilars and the patients' perspective which is addressed to Healthcare providers. The training session includes a video simulation and a leaflet addressed to patients and to be distributed by physicians during their medical examination.
For more information about this project please contact the EFCCA office.
EFCCA is involved in an exciting EU Research Project under the Innovative Medicines Initiative (IMI 2) (Horizon 2020).
The ImmUinverse project main goal is the improved diagnostic and therapeutic options for patients living with ulcerative colitis and atopic dermatitis. New insights into disease severity and progression will enable personalised therapy for each individual patient.
The global impact of COVID-19 has been overwhelming and without pause, accelerating at lightning speed, changing our lives and our way of seeing the world. In recent months, unfortunately, the philosophy of our organization, which is to create spaces for meeting, for dialogue between the various associations and all the interlocutors. has also had to change.
EFCCA has embarked on exciting research with Takeda to find out the impact of complex perianal fistulae on quality of life from Crohn’s disease patients’ perspective. Crohn’s disease patients both with and without perianal fistulae are invited to participate.
The questionnaire has been developed in cooperation with both experts and patient representatives. It includes questions about diagnosis, symptoms experienced, and the impact of the condition on quality of life in different areas – personal relationships (spouse, family and friends), work, and social life.
The Yellowstone Crohn’s Disease Clinical Research Program
New survey on the indirect costs of IBD. The aim of the study is to assess the influence of IBD on the patients productivity at work and relevant costs for society.
IBD and parenthood - Survey on couples with IBD and their offspring
NEW: EFCCA Academy 2020 edition
FCCA Academy - Training Certified Patient Experts
EFCCA is embarking on an exciting new project under the title "EFCCA Academy- Training Certified Patient Experts". The pilot phase was launched in mid 2018.