About EFCCA

Improving the life of people with IBD

 

About Us

The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA)  is an umbrella organisation representing 36 national Crohn’s and Ulcerative Colitis (collectively known as IBD)  patient associations.  We are an organization of people united in our commitment to improve the life of the over 10 million people living with IBD worldwide (3.4 million in Europe alone) and to give them a louder voice and more visibility.

What do we do?

Networking

We encourage and facilitate the exchange of information and the promotion of international activities. We collaborate with other umbrella associations such as the European Crohn’s and Colitis Organisation (ECCO) representing the medical profession, the United European Gastroenterologists Federation (UEGF), the European Patients’ Forum (EPF) and many other networks and organisations working in the health related field. 

Awareness raising

Through World IBD Day and other initiatives we want to raise awareness about IBD as there is still little public understanding of the pain and chronic suffering with which IBD patients courageously cope every day of their lives.

Advocacy

We carry out advocacy work with the EU institutions and international organisations such as the WHO to ensure that patients´ concerns are included in  the decision making process for policies and other related health initiatives.

Empowerment

Through the exchange of best practise and capacity building activities such as educational seminars, thematic workshops and policy initiatives we support our members in their work and mission at national level.

Solidarity

We assist in the establishment of new associations in countries where they do not yet exist offering our support and advice. Through World IBD Day and other activities and events we bring the IBD community together in our common fight against IBD.

 

Mission 

Our mission is to improve the life of people with Crohn’s disease and Ulcerative Colitis collectively referred to as Inflammatory Bowel Disease (IBD).

 

 

Vision 

Our vision is to find a cure for Inflammatory Bowel Disease (IBD).

 

EFCCA Governing Board

 


 
 
EFCCA Chairperson: Salvo Leone
CEO of the Italian IBD Association 
 

 
 
EFCCA Honorary Secretary and Vice President: Ciara Drohan
Member of the Irish Society for Colitis and Crohns Disease ( ISCC)
 

 
 
EFCCA Treasurer: Marko Perovic
Member of the Serbian IBD association, UKUKS
 
 

 
 
EFCCA Board member: Magda Sajak
Member of the Polish IBD association, J-elita

 

 

 
EFCCA Board member: Natasa Theodosiou
Board member of the Cyprus IBD association, CYCCA
 
 
EFCCA Board member (EYG representation): Bastien Corsat
Member of AFA Crohn RCH, France
E-mail:
efccayg@gmail.com
 
 
 
 

EFCCA staff

CEO: Luisa AVEDANO

E-mail: luisa.avedano@efcca.org


Deputy Director: Isabella HAAF

E-mail: bella.haaf@efcca.org

 

 

Research and Project Coordinator: Sanna Lönnfors

E-mail: sanna.lonnfors@efcca.org

 

EFCCA History

Following the identification of IBD as a recognisable chronic illness, specific self-help groups began to appear cross Europe. By the mid 1980s, most of the groups which now constitute the European National Associations for Crohn's and Colitis patients had been formed. Further development of these organisations has reflected the growth of IBD diagnosis, the increasing visibility of the benefits of self-help associations and their increasing roles.

In the beginning of the 90s a small group of IBD associations from the Netherlands, UK, Germany, Luxembourg and Belgium got together with the idea of setting up a European Federation of IBD associations.  The aim then was to encouragethe exchange of information and the promotion of international activities, including knowledge exchange with Crohn’s and Colitis organisations in other parts of the world and to assist in establishing new associations in European countries where they did not exist yet. 

EFCCA Official documents

Statute (Pdf - 191.35 KB)

EFCCA Commitment to transparency