Welcome to EFCCA

The European Federation of Crohn's & Ulcerative Colitis Associations is an umbrella organisation representing 33 national patient associations. EFCCA  works  to improve the quality of life for people with IBD and give them a louder voice and higher visibility across Europe and beyond. 

Its headquarter is based in Brussels and has three staff members that work alongside the Executive Board which consists of 6 elected representatives from its member associations. 

Projects Highlights

Start date: 10/2014
Status: Active
In the last two years the issue on biologics and biosimilars has received a lot of attention from the medical, regulatory and patient community. Licensing rights of biological medicines used in the...
Start date: 07/2016
Status: Active
Innovative medicines - EU mapping project   The objective of this project is to reduce health inequalities in Europe through an exhaustive mapping of all innovative treatments and devices available...

What's New

On 15th November 2016, more than 70 patient advocates and physicians from across the European Union attended the Patient Advocacy and Safety conference at the European Parliament in Brussels, Belgium...
The European Commission DG for Internal Market, Industry, Entrepreneurship and SMEs, have published  6 new language versions of the patient information document "What you need to know about...
A pharmaceutical company is currently conducting a short anonymous survey to better understand the motivations that Crohn’s disease patients with perianal fistulas may have to accept or reject their...
PACIFHAN assists people travelling with Home Artificial Nutrition “To travel is to live” Hans Christian Andersen Imagine having a complex medical condition and treatment that enables you to live but...
We are pleased to announce a new initiative, "Innovations in Gastroenterology, 2017 Symposium” to be held in Tel Aviv, January 4-6, 2017. This will be an exclusive event where gastroenterologists,...
EFCCA CEO,  Luisa Avedano, participated at the press conference on Paediatric Digestive Health during the UEG Week in Vienna on 17 October 2016. She presented the Transition to Adult Care project...
The Lithuanian Health Forum Conference held in Vilnius was organised to consolidate and address the policies, goals, and objectives of the Vilnius Declaration’s “Sustainable Health Systems for...
The third issue of the EFCCA Magazine 2016 is now available online. We hope you enjoy reading about our latest activities, news from our members and other interesting articles related to IBD such as...
This is the Executive Summary of the Patient Advocacy Workshop on Patient Safety which took place in Barcelona from 4-6 February 2016 and gathered over 60 patient representatives from a wide range of...
The EU project IPODD takes a pragmatic approach to IBDs by focusing on the final stages of gut damage. Sergio Pistoi, IPODD Public Information Officer* If criminals were behind inflammatory bowel...
An international online survey promoted by the European Federation Of Crohn’s And Ulcerative Colitis Associations (EFCCA) with the Scientific Support of and international team of experts led by...
Results of the EFCCA led IMPACT survey have been published in the latest issue of the Journal Crohn´s and Colitis. In the article entitled "IBD and health-related quality of life- Discovering the...

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